well folks the flute guy is back.new computer and all.
bestbuy has fairly healthy compaq laptops for some reasonable prices right now.theyve got one model with 160gig hard drive for 400$ and the one i got with a 250gig hard drive for 450$.....wireless ready,vista premiumand plenty of other stuff in the box for my cats to mess with.



other than that,the LDN is holding steady for me.i got called a liar the other day at the dentist office.they couldnt believe that just about 8months ago i was on a walker.seems kind hard for me to believe myself,but it was just 8 months ago i even needed to scoot down stairs on my backside.
for once in my life i get to be the person on the tv commercial with the caption 'results not typical' printed across my waist

getting there.

My dad's doing okay, his kidney EGFR levels dropped from the bad/low 31 down to 26, but my sister told me it's back up to 31 again.

I'm thinking of going there for a few days next month, not sure if I can yet though; I'll find out this week



That's where I got mine. cute LITTLE HP S3700Y, it was light enough for me to carry.

Been on 3 mg of LDN for 2 months now. Not noticing much of anything in improvements. It's hard for me to tell. I've had more spasticity than normal though since starting. I need to re-order more. Wondering if I should try 4.5 mg since that's the optimum dose? What do you all think? I could get a script for 1.5 mg caps, which is what I wanted my neuro to order in the first place, but he was being difficult.

Aaaacccckkk! Those Dreams!
 

I've been taking 4.5 mg. of LDN since August.

My abilities have remained the same, but the numbness has spread. I manage to sleep pretty good at night, with only a couple of brief wake-ups.

But its the Dreams that keep me from getting a good night's sleep!

A couple of nights ago my sons and I were preparing to be thrown into jail for a wrongdoing. One son had three oversized, stained teeth in front, and needed to go to the dentist because one of them was decayed.

Last night I dreamed a work crew was coming to stucco my house. Meanwhile, I was using a walker and was dying of cancer. I was okay with it, though, but my daughter was horrible to me! :eek:

*sigh

At least I had all my clothes on, lol! :D

i never really had any issues wth the dreams, i almost kind feel cheated on that one. i only chad one bizzar dream.thats it just the one. i started at the 1.5mg for the first week. i was planning to do the first month at 1.5mg but i got antsy and went up to the 3mg early.after about a month at 3mg i went up to the 4.5mg and stayed there for about a month. just for kicks and giggles i went back down to 3.0 just to see if there was going to be any real noticable difference and there sure was. my legs got real tight,hamstrings would cramp up on me very easily and my balance deteriated. so, i went back to the 4.5 and thats where ive been since. im certainly not 100% but when i think back to the time i was speaking to the director of the shelter i work at. she saked how bad my left arm was and i took the sleeve of the shirt i was wearing and slammed my arm on her desk a few times. she cringed,but i didnt feel a thing. back then the arm was just kind of hanging there.
and here it is,not even a year later and im working on getting back in school to start training for a new career.

Sure, you could try it. You can always go back down, if it's too much too soon.

Good luck..:hug:

Twink, I still have some vivid dreams..:eek: I assume it's the LDN.. They do wake me up but I usually go right back to sleep.

I don't ever sleep through the night, though. I usually wake up every 3 to 4 hrs and then, of course, have to go potty..:mad:

I hope you sleep well tonight..:hug:

Hi everyone,
Checking in.
I am still on 3.0 mg. I get tempted to increase the dosage but will wait just a bit longer. I dream vividly every night in color. I, like Sally, wake up for the potty. Otherwise, I would have the potty dream, looking for a bathroom and find none suitable, in the dream that is. :)

I found the capsules that Skip's puts the LDN in (1.5 mg each) does not dissolve well for me, so I wasn't getting the full benefit at the right time. Every night I open each 1.5 mg Capsule stir the powered drug on to a large tablespoon of apple sauce, pudding, ice cream, etc. Then I do the same with the other 1.5 mg. I follow this with a glass of water.

I lick the spoon well to get all the drug. It is such a small amount of LDN and mostly filler. I don't put it in water because I don't know how much sticks to the glass. I can't lick the glass clean. :D This is how I do it.

I still feel I am getting benefit from the LDN. I find it to have pain relieving properties too. My DH noticed how my balance and drunken walk has improved, and I seem to have more energy. I am on LDN for almost 3 1/2 months.

After I get my blood work done in three months from now, I will increase the dosage. I have two other doctors to see before that, for other medical issues I have, with other specialists. I am still happy with the LDN. :)
:grouphug:

Hi LDN folks,

I have some questions I'm hoping someone can answer. My mother has MS and her neurologist on the east coast is willing to try LDN and write the prescription I guess. What does my mother have to do next? Isn't there a compounding pharmacy somewhere that everyone goes to? How much do you start with? What do you go up to?

Thanks!

Hi Nat, All your questions are answered somewhere in this lengthy thread..LOL.

Just have your Mother call Skips Pharmacy in Fla and set up a payment/delivery schedule with them and have her Doc fax the script to Skips. If your Mother is very Med sensitive, then she should start at 1.5mgs and go up to 3mg in a couple of weeks and then up to 4.5 mgs in another couple of weeks. If 4.5 mgs cause more spasticity then go back down to 3mg and stay there for awhile.

I started on 3mg and stayed there for 2 years and now, I'm on 4.5mg for the last 4 years.

Let me know, if I may be of any further help.

:hug: