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-   -   LDN Information & Check-in 2 (https://www.neurotalk.org/multiple-sclerosis/71392-ldn-information-check-2-a.html)

Kitty 04-04-2009 10:23 AM

Quote:

Originally Posted by Bearygood (Post 491141)
Hey, did you guys see this? Sorry if it's already been mentioned but I just stumbled upon it when I was trying to look for something for Erin. If you click on Multiple Sclerosis, you'll see people who have cited their experience with LDN. Some of you might want to add your own experience:

http://www.ldndatabase.com/


Thank you so much for this, Beary! It's amazing all the positive feedback given by LDN users. :)

Bearygood 04-04-2009 10:27 AM

Quote:

Originally Posted by Kitty (Post 491148)
Thank you so much for this, Beary! It's amazing all the positive feedback given by LDN users. :)

I know it's not universal that everyone has had good experiences but that's the same with any drug and I agree that the results are impressive. If I do go on medication at some point, this is what I'd try first. :)

Kitty 04-04-2009 11:49 AM

The nice thing about LDN is that it helps so many different diseases. I'm wondering if it will help prevent cancer from ever forming in those who are taking it for another reason like MS?

SallyC 04-04-2009 12:34 PM

Dr Bahari and his wife take it as a cancer preventative!!!

Kitty 04-04-2009 02:39 PM

Quote:

Originally Posted by SallyC (Post 491214)
Dr Bahari and his wife take it as a cancer preventative!!!


It can't hurt......might help! I really wish more people would give it a try.

My neighbor with ALS has gotten an rx for it and is waiting for his meds to arrive in the mail. I told him I'd give him a few of mine if he wants to get started now but he's going to wait. I'm so excited for him.......I'll report back how he's doing once he's been on it a few weeks. He's only 40 years old and he's progressed rapidly over this part year. Last year he could still walk.....this year he's in a power chair. I wish I could have gotten him to try it sooner.

His wife and I were talking the other day and commenting on how many people just on our street have neurological ailments. My neighbor has Parkinson's, I have MS and he has ALS.

Curious 04-04-2009 03:36 PM

Kitty, we have some PD members on LDN.

SallyC 04-04-2009 06:44 PM

Kelly, I hope LDN helps to hold your friend's ALS back for a long while, but it will not stop it. I believe it did slow my friend's ALS, for 6 years, but alas he did pass away this year..he was only in his 40s..:(

ALS is not the same as MS, it's a muscle disease and deadly. But like you said, it cannot hurt and just may help him. I will pray every day, that it does..:hug:

mom2five 04-06-2009 07:06 PM

Rats! I lost my sense of taste. My tongue isn't numb, I don't think, LOL...but I definitely can't taste my food. I tried to eat a few peanut M&M's today, no taste...now THAT is tragic! :( Unless something is really salty, I can't taste it. Sugar - no taste...aaagh!

I guess it will be good for my waistline. :rolleyes:

I missed ONE pill over the weekend. Fell asleep watching a movie. It seems to take a few days to recover when I miss...has anyone else noticed that?

mom2five 04-07-2009 12:29 PM

I had my appointment with Dr. Sullivan today...:)

I told him about my loss of taste...he said that I am most likely low in magnesium and zinc...sooooo

I took a bunch of both. I will keep you posted.

marion06095 04-07-2009 01:11 PM

I lose my sense of taste now and then, as well as my sense of smell. I'll be interested in hearing how you get along. Thanks for the posts.


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