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-   -   LDN Information & Check-in 2 (https://www.neurotalk.org/multiple-sclerosis/71392-ldn-information-check-2-a.html)

lady_express_44 02-07-2009 03:48 PM

Just make sure you treat any infection immediately (like sinuses, etc.), Kelly, and if you are like me with colds, you'll get through this without TOOOooooo much ado. :hug:

Cherie

Lady 02-07-2009 11:14 PM

I have a question. :D

I have a Thyroid goiter which is visible, with many nodules in it. I can't touch the outside of my neck for pain or wear anything close up to my neck because it hurts my Thyroid so much.

I have been to my Endocrinologist for years, had it dx'd as such, and biopsies were taken. I had an MRI of the neck and Thyroid done, and an Ultra sound over the years also.

It is benign, TG. The pain from the pressure on my throat from the enlarged thyroid was just another disease with pain for me. No medication for it, as tests are within normal range.

My E.N.T. doctor wanted to remove half of it, the largest side and put me on Thyroid meds for life last year.

Having said that, I now have noticed that since I have been on LDN the Thyroid has shrunk to normal and no pain whatsoever. I can touch it and put on a turtle neck sweater even. This is amazing.:)

Do you think that after the last 5 years with this Thyroid condition that the LDN is responsible for this response? I just noticed it these last two weeks.

Thanks for any thoughts on this you pro's might have.:hug:

lady_express_44 02-08-2009 12:13 AM

You know, LDN claims to be manage some types of cancer, so I suppose it is not totally unrealistic to expect it to help with other yet unknown ailments.

I have Ulcerative Colitis and haven't had one serious attack since being on LDN. It has been trialed and proved very successful for managing Crohn's attacks, so I've chosen to "presume" it is helping my UC too.

Geez, Lady . . . after all these years, I thought you might be one of the LAST people who would try LDN, let alone be so excited about it's potential. :D Glad it's doin' what it should for you cause you are a good example to have on our side of the fence. :p ;)

Cherie

SallyC 02-08-2009 02:25 PM

Lady I believe that LDN, in raising our natural endorphins, can and does help in many ways to keep us healthy and fight certain illnesses.

I always notice than when I am ill with a bug of some sort that I am better in a shorter period of time, now, due to LDN, and sores seem to heal faster....my hair and nails grow faster and stronger.:eek:

LDN has not cured my MS, only helped reduce symptoms and attacks, but taking it has made me feel better overall. It is a good thing..:cool: I will take it for the rest of my life..:hug:

Lady 02-08-2009 09:12 PM

I found something on the LDN website about Thyroid conditions. This may be why my Thyroid is going back to normal. It sems it regulations the Thyroid in some way. Hmm

Under cautions and warnings.

Those patients who are taking thyroid hormone replacement for a diagnosis of Hashimoto’s thyroiditis with hypothyroidism ought to begin LDN at the lowest range (1.5mg for an adult).

Be aware that LDN may lead to a prompt decrease in the autoimmune disorder, which then may require a rapid reduction in the dose of thyroid hormone replacement in order to avoid symptoms of hyperthyroidism.
http://www.lowdosenaltrexone.org/

mom2five 02-09-2009 11:22 AM

Lady, I think that is so exciting! :D

If the theory behind LDN is true, and our immune systems just needed more endorphins in order to be regulated properly...it would make sense to me that things that are affected by our immune system would improve...

Healing of sores, colds, infections and any other "dis-ease" the body is trying to fight. Thank you sooo much for sharing. :)

lady_express_44 02-09-2009 09:38 PM

So I usually see my MS Specialist once a year for LTD purposes (whether I need to or not), but I made an appointment early this time so that I could talk to her about the possiblility that I may have Devic's/NMO. We talked for a while, and then she suggested minocycline to add to the LDN. We've had that conversation before, because I seem to get lots of infections that stir up the MS, but had decided not to at the time as I had had an allergic reaction the last time on Tetracycline.

I decided I'm going to try it again though. :cool:

After talking with her, she arranged for me to meet with her PA to go over the latest trial opportunities, and for me to get the rx of minocycline. She came in and the first thing out of her mouth was "where is the best compounding pharmacy locally for people to get their LDN?". Her next question was "what side effects might some people get?"

It seems they are rxing LDN from there now too, just as my last MS Specialist got on board eventually. :) I never asked any questions about "how many people are asking for it?" or anything, I just went along like I am not surprised that some people would be requesting it.

I have only had one MRI in almost 18 yrs, so before sending away my NMO-IgG testing (for Devic's), my Neuro has decided to do another MRI. She wants to see what has changed since 2003, and how big my spinal lesions appear now. The last time I didn't have gad-enhanced, so there really isn't going to be a good comparison, but at least we can have a solid "view" to go forward from now.

Interesting meeting. :)

Cherie

marion06095 02-12-2009 05:19 PM

I am finally back from my wonderfully long vacation. It is very good to be home. We had a wonderful time, and I was able to be quite active (for me). I didn’t use my power chair even once, though we did bring it with us for much of the trip. I was also glad to have and use the rollator several times because it meant that I could do much more. If we had taken the same trip last year at this time – before LDN, I never would have been able to do half of fun stuff I was able to do.

mom2five 02-12-2009 05:52 PM

Good for you, Marion! We don't need clinical trials to tell us that LDN works! ;)

SallyC 02-12-2009 08:13 PM

Welcome back Marion. Whoo Hoo for having a great time.:cool:

I am so glad LDN is helping you to live a better life. :hug:


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