II'm no better but i'm no worse, that's a good thing. I already spoke with the pharmacist about upping my dosage in small increments. I'm gonna try it soon. My dh is also on Asacol and 10 mg of prednisone for the time being.

My 18 year old son does have Crohn's too. He's on Mercaptapurine and has been doing very well.

I just want to add that my 22 year old son is showing some symptoms of a gastro nature now too . He is vomiting about once a week for no reason, he has horrible bouts of heartburn like pain, he's getting ulcers in the back of his mouth. He does not want to go the gastroenterologist. I certainly understand why. I tried to explain it's not necessarily Crohn's but he is very reluctant after the he!! his dad brother have been through.

I'm trying very hard not to show how terrified I am. He still lives with us so I will just make the appt. And drag his skinny butt to the doctor.

No worse is great, Joelle, especially with all the stress you have had lately.

Geez, Joellelee! You must be starting to wonder about the water around there, eh?

Cherie

It is a beautiful Spring Sunday morning. The temperature is going to be in the low seventies, and it is sunny and breezy. I am having one of those rare mornings where I can hardly wait to get started. I am going to have to ration my vigor, and my objective is to use up every ounce of energy I can muster without wearing myself out too early in the day. My trusty electric weed whacker is charging in the corner, and the flowerbeds could use some minor sprucing. I’ll lug my tools around the yard with me on my rollator, and I’ll take plenty of sit-down-and-stare-into-space breaks. Then it will be time for the event of the day (drum roll)! My trusty John Deere, super-charged, zero turn radius lawn mower waits in the shed. I usually save that “chore” for last, when my legs start to feel like clay. I’ll just hop on my steed and mow the heck out of the two acres of lawn we maintain. And when I start to tremor and stumble too much to be practical, I’ll retire to the garage – er - I mean the solarium, to pamper my achiness in the swim-spa. Ain’t life grand?

Thank you, LDN!

And guess what’s bloomin’ around here today –

Since this is an update thread I thought I’d let you know how my ambitious Sunday went. I hit the back yard around 11am. I puttered a bit in the flower garden and I pruned some of the Peonies whose blossoms were past prime. I loosened the dirt around the Impatiens, and I discovered that my trusty weed whacker isn’t as trusty as I had thought. I guess the battery doesn’t hold a charge any more.

It was beautifully breezy, but I was overheated in no time at all. By shortly after noontime I started to have reduced hearing in my right ear, which often is my first sign to take a chill. Long about then my sister visited, and we sat in the shade and gabbed for a couple of hours. My strength returned, so I started to mow the lawn with my fancy-shmancy rider mower. About half way through the job, we got a pop-up shower, so I moved headquarters back into the house.

Although I really didn’t even do a full hour of light yard work, considering my stare-into-space breaks, I felt all worn out. It just feels good to be useful and do at least a little “normal people” work. I never really do accomplish as much as I had intended, but that’s OK. With LDN I am just grateful for being able to muster enough ambition to enjoy a day like yesterday.

I am, too, so thankful for LDN. I'm starting to have some problems with the weather changes...my body doesn't like it. But I remember what it was like before LDN and, believe me, it's so much better going, with it's help.

It's gonna be a looooong Summer, but not nearly as bad as it could be..

I love hearing all your positive stories, but, your not so positive stories are also welcome...maybe we can help.

I remember summers "pre-LDN". Not fun. They're still challenging but not as much as before. At least I can tolerate being inside in the cool A/C......before LDN I was just plain miserable whether I was inside and cool or outside and hot.

We have a "smog index" reading each day during the summer months along with the weather forecast. I've found that the dirtier the air outside is the harder time I have adjusting to the temperature changes. Maybe it just comes with getting older.

I started LDN is the Winter, so this will be a new experience for me. Summer is not as bad as Winter, IMO.

Although, I never stayed out too long because I don't sweat. I get overheated very quickly. I rub cold water on my face, arms and legs to let it evaporate and cool me off. I wear a hat. I love hats.

In the Winter I can't get warm. I am always cold. Hands and feet are like ice blocks, and that is inside the house with socks and slippers on. I wear hats and gloves and bundle up. Too much clothes and hassle in the Winter. Then the ice and snow factor. Yikes!

Marion, it sounds like you are doing so well. Good for you.

joellelee, I am sorry to hear you and your family are having so many problems with your/their health. I hope the LDN starts kickin in soon for you. Feel better soon.

this will be my first summer since getting diagnosed last summer. so far i have noticed that high humidity does seem to slow me down a bit. i havent seen any real heat issues, persey yet,but we'll see.i did have a strange feeling while driving home from work yesterday though. i was sitting at a stoplight and the sunlight on the side of my face felt like the heat from a campfire.right there on my face. so i have notived that i do precieve heat and cold differently than i used to.

I prefer winter, since you can always bundle up and get warm. In the summer, even with A/C, you can't always escape the effects of the heat and humidity.

Daily LDN, Prozac and an asprin, once in awhile, helps a lot..