I love your reports, Flute. I'm so happy that things are going relatively well for you..

Me, too, Flute! I'd hate to see what kind of shape I'd be in were it not for LDN. I was on Copaxone and then Betaseron and couldn't take either. And, at this point, I'm kind of glad, because I think LDN has proven to work better than either of those DMD's.

Why does everyone (doctor's included) think treatment has to be expensive, have horrible side effects, and be painful??? Sometimes the most obvious solution is the easiest one.

i ran into one of my past adopters at the shelter today. when she adopted her dog a few months ago i had told her about the LDN for her UC and she was pretty thrilled to hear about it. she was telling me how she went straight home with the yorkie she had just adopted and with the laptop on one side and her dog on the other she scoured the ldninfo web page.read every word on every link. shes doing so much better on the LDN than she did on her conventional meds that her Dr is wondering if she really had UC to begin with.while she was telling me this story one of our voulenteers over heard what we were talking about andin going to look into LDN for her chronic fatigue.i think that makes about 6 people ive gotten to about LDN

Way to "play it forward", flute.

I have Ulcerative Colitis too, so I was hoping to get that added benefit. I haven't had any full blown UC attacks since going on, and I used to get them in clusters usually once a year.

I have found that if I start to get the UC pains (which I have still had a few times, even while on LDN), I can heed off the "attack" by using 2 Advil right away. That used to stop the imminent attack in it's tracks, but often the underlying condition still plagued me and I would have to use sulfa drugs to control it. I haven't used the sulfa drugs once since LDN.

So .... what did the Yorkie have to do with the story?

Cherie

Hey, the Yorkie was the inspiration..

Low dose naltrexone is different than the other disease-modifying therapies. The CRAB drugs (Copaxone, Rebif, Avonex and Betaseron) are long-acting immunomodulating drugs. Naltrexone is not. Naltrexone has the mechanism of blocking opioid receptors and (probably) stimulating the release of endorphins, which happens shortly after it is taken. What this means is that there are distinct immediate effects of Naltrexone that we can feel, mostly in the quality of our sleep and in unusually lucid dreams.


http://ms.about.com/b/2009/06/23/jul...doses.htm?nl=1

I missed taking my LDN for two nights in a row. It won’t happen again, since I now have an alarm clock set to go off every night at 9pm. Not that I’d do it on purpose, but I don’t think it is a bad thing to be reminded what life was like before LDN. I ache, ache, ACHE. I need my rollator. My tremors are out of control. How easily one forgets.

Marion, What were you thinking about? Hmm

It must have been a very good time you were having. Or were you just day dreaming time away? Were you out partying?-- and then you forgot to take your LDN?

So far I have been lucky. I haven't forgotten to take the LDN, but I do vary the times I take it. I remember to take it, but it is too early, or I get on the net and my goodness how fast the time flies.

Then I scurry around to get it, and take my food and coffee with it. I can have coffee all day and night, even before bed, in case you wondered about that statement.

10 to 15 cups a day. It is instant, btw. I am not sure if stronger, drip coffee would keep me up, but instant doesn't, and it's leaded, not unleaded. Strong, drip coffee hurts my tummy most of the time.

Oh, and I'm addicted to chocolate too. Yummy

Marion I guess the alarm clock is a good idea. But what if you are out? What do you do then?

If I am out, when I come home I'll find the alarm clock beeping away. That'll remind me no matter what time "before bedtime" is.

How have you been doing otherwise on LDN, Marion?

Glad you figured out a future gameplan.

Cherie