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-   -   LDN Information & Check-in 2 (https://www.neurotalk.org/multiple-sclerosis/71392-ldn-information-check-2-a.html)

SallyC 02-16-2010 12:06 PM

Quote:

Originally Posted by Kitty (Post 622295)
Has anyone ever done an "every other day" course of LDN? I've forgotten to take mine probably three or four times over the course of the last two years. I haven't noticed any big difference, but don't want to rock the boat. The only benefit I see is that my LDN would last longer. But it's so inexpensive that it's not worth the possible flare up that might occur by not taking it regularly. Just wondering if anyone has experimented with it.

I guess skipping one day (NO MORE) would hurt, once in awhile, but, for myself, I wouldn't think of it. DD skipped a couple/three days and had an attack. As soon as she got back on it, it was back to remission.

My advise...Don't!!:)

Kitty 02-16-2010 12:26 PM

I'm not gonna try it, Sal. :cool: I have enough to deal with that I don't ask for.......why roll the dice!!? ;)

LarryLDN 02-16-2010 04:42 PM

Quote:

Originally Posted by Kitty (Post 622295)
Has anyone ever done an "every other day" course of LDN? I've forgotten to take mine probably three or four times over the course of the last two years. I haven't noticed any big difference, but don't want to rock the boat. The only benefit I see is that my LDN would last longer. But it's so inexpensive that it's not worth the possible flare up that might occur by not taking it regularly. Just wondering if anyone has experimented with it.

I never missed more than one day.... 7 times I think now.... since 2003

Lady 02-17-2010 01:11 AM

Hi everyone,
I only missed one day since Dec.15,2008. That was for my test of the colon test, a few pages back on here.

I wouldn't stop taking LDN if I was paid to stop. :) I have seen many improvements over time. I don't want to ever go back to those crapola days.

It sure helped me more than the DMD's did. In fact the DMD's didn't help much at all, come to think about it. They caused more problems with their side effects. I don't have side effects on LDN, which is great.

I am thinking of taking it a bit earlier too Kitty. Not as early as you are doing. I go to bed so late I think my endorphins do their ritual before I get to bed, so I should take it a little earlier me thinks. :hug:

Anyone else?

PS: I read that S.J. had the surgery for CCSVI. Can anyone confirm?

Kitty 02-24-2010 10:32 AM

Update:

I've been taking my LDN between 4 AM - 7 AM now for over a week and it's been awesome!! I feel so much better and sleep so much better. I usually take it with my thyroid pill first thing in the AM when I wake up - which is usually around 4 AM. I always go back to bed around 5:30 - 6 AM and sleep really good for about 3 hours. :)

Lady 02-25-2010 06:40 PM

Kitty what time do you usually go to bed at night ?--and how long do you sleep? You wake at 4 am you said, but how many hours of good sleep do you get before that 4 am wake up time? Just curious. :hug:

Then you go back for 3 more hours, is that a nap of part of your nightly total?

Lady 02-25-2010 06:52 PM

Update:
I got the results of my Colonoscopy. In 1998 I had been Dx'd with Collagenous colitis (Microscopic colitis), seen only under a microscope, causing diarrhea and/or constipation. An auto-immune disease he said.

The biopsy report now said it was gone??? I asked the Gastro doctor how could that be if I was born with it? He said he did not know. :confused:

Does LDN help with bowel disease such as Crohn's-like and similar bowel diseases? I am puzzled how this just disappeared. Does anyone know?:confused:

Kitty 02-25-2010 07:20 PM

Quote:

Originally Posted by Lady (Post 626174)
Kitty what time do you usually go to bed at night ?--and how long do you sleep? You wake at 4 am you said, but how many hours of good sleep do you get before that 4 am wake up time? Just curious. :hug:

Then you go back for 3 more hours, is that a nap of part of your nightly total?

I've never been a good sleeper. 4 hours at a stretch is usually the longest I can manage to stay asleep.

I usually go to bed anytime between 9 - 11 PM. Up again sometime between 1 - 3 AM. Up again around 5:30 AM only because I'm woken up by my son getting ready for work (he's noisy + I'm a light sleeper). Seems I sleep best when I go back to bed around 6 AM.

I wish I could get a consistent 8 hours at a time. But I never have and probably never will be like that. :rolleyes:

Kitty 02-25-2010 07:23 PM

Quote:

Originally Posted by Lady (Post 626181)
Does LDN help with bowel disease such as Crohn's-like and similar bowel diseases? I am puzzled how this just disappeared. Does anyone know?:confused:

I've read that it does help conditions like Crohn's. I know someone who takes it specifically for Crohn's and is doing remarkably well.

http://www.lowdosenaltrexone.org/ldn_and_ai.htm

SallyC 02-25-2010 07:37 PM

OMG, Lady, that is wonderful news. Yes, LDN has been studied with Crohns and has good reports, as far as I've heard.

You should go to the LDN Homepage and check on it yourself and also report it to Dr Gluck, there...and To Skip's.:cool:

:hug::hug:


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