Yeah....I like that word "optimal". Even if I can't feel it working I know it's doing something good! :)

Hi RelynonHim.
I get my LDN capsules in 1.5 mgs in each capsule for now. This way I can play with the dosage. I started on 1.5mg for 10 days to see if I had any allergies to it.

No problems with allergies, so I upped it to two 1.5 mg capsules, totaling now 3.0 mgs at night. I have stayed on that for the last year and a half.

My Neuro said to try 4.5 mgs but each time I did I would get spasms, and leg cramps, so I had to go back to 3.0 mg a night. It works well for me at that level.

Who knows, in the future I may go up again. But if the wheel isn't broken why try to fix it, you know?

As for you question about seizure activity, I really don't know. What kind of seizures are they talking about? I had a long EEG, I fell a sleep during it and she said no, it showed up as a seizure, not sleep.

She said I had myoclonic seizures. To this day I really don't know what they are or how they effect me. I have myoclonic jerks, them I do understand.

I don't believe I have had them in a while, so maybe the LDN helps, I don't know even where to look up seizures and LDN.

Maybe someone else on here has that information to help you. A website to read, or you could call the pharmacy where you get the drug compounded.

Do you take anything for seizures now? Is it Epilepsy type seizures? I hope it helps you too. Good luck.

thanks!
I am not diagnosed with seizures, no medication....I just had that one 20 minute EEG that showed spikes. I have to schedule a 3 day EEG now. I had the EEG because family and friends noticed times when I would just zone out with a blank stare. (seconds only) and I noticed great difficulty with finding words.

When I mentioned it to the neuro....I thought maybe it was MS related.

Lady...have you continued to have seizures? and do you take any seizure med?

I sure hope LDN helps! I am still waiting for it to come in the mail.

Blessings.

ROH, I don't have the regular Epilepsy type seizures. Myoclonic Seizures are massive muscle jerks, as compared to tremors, or small myoclonic jerks. My leg used to jump up high when sitting, my arm would just go out at the elbow, all for no reason at all, and without pain or thought. It just happened.

It is common in MS and other nervous system diseases. This was part of my rule out when I was first tested for MS and had these. No meds for them except Klonopin. Now added LDN.

I still may pick up an object and toss it. It is involuntary, like hiccups, they said. My kids say I can REALLY toss a salad..like across the room. :)

I have them maybe once a week now, and end up flinging or dropping something swiftly. This is what they called them and apparently they show up on an EEG. If I stare or zone out, it hasn't been mentioned to me.

I think when people are in deep thought, very busy thinking of something important, they seem to be zoned out or staring. I call it heavy thinking. You may not even hear someone call you, being so busy thinking or looking for answers in thought. JMO

A new LDN site to check out...:)

http://www.ldnscience.org/

Thank you, Sally! It looks very interesting.....and current! :)

I don't know about that site Sally. It looks more like an advertisement for OGF and they are looking for donations on every page.

If you join the newsletter they probably will hound you with email. JMO

They do discuss LDN, but not too much information on it. I'll have to go back and read more. I am the world's biggest skeptic. :rolleyes:

Did I miss something on that site?

I didn't really check it out, Lady, It came to from a friend, so I trusted it, but with what you have said, I'm deleting the site from my post.:eek:

Thank you..:hug:

EDIT:: Now that I have check it out myself, I see that, even though they ask for donations for research, it still has much to offer in information, so, I put the link back in.:D

I signed up for the newsletter, Sal. I'm sure I can unsubscribe if I choose to. I'll let ya'll know what it contains.....and post anything that seems to be of value to everyone here. :)

I have the Myoclonic seizures in my sleep. At least I assume that's what they are. I jerk so severly I wake myself up. Even the cat moves over to the loveseat that's in my bedroom when I do this! :o

I also "zone out" frequently. Don't know if it's just because I might get sleepy or too deep in thought...but I find myself just sitting and staring - but still deep in thought. Maybe it's just my way of relaxing?