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-   -   LDN Information & Check-in 2 (https://www.neurotalk.org/multiple-sclerosis/71392-ldn-information-check-2-a.html)

Kitty 07-25-2010 03:42 PM

So glad your biopsy was benign, Lady. It's so stressful to wait and worry.

I usually wake up sometime between 12:30 AM and 2 AM - depending on which cat decides they've waited long enough on me! :rolleyes: I try to wait till just before I go back to bed to take my LDN.....waiting as late as I can. Sometimes I'm just too sleepy and take it at 1 AM. Sometimes I can hold out till closer to 3 AM. I can't really tell a big difference regardless of whether I take it early or later.

I have noticed that my right hand is getting more "feeling" back in it, though. It's still numb for the most part but I have more sensation in it and can tell when I'm holding something whereas before I couldn't tell if I was holding anything at all. :)

SallyC 07-25-2010 06:42 PM

Quote:

Originally Posted by Kitty (Post 678860)
I have noticed that my right hand is getting more "feeling" back in it, though. It's still numb for the most part but I have more sensation in it and can tell when I'm holding something whereas before I couldn't tell if I was holding anything at all. :)

Good for you, Kelly.:hug: .I have noticed the same thing in my left hand and foot....a little better feeling and movement. Of course it's the LDN..;)

Kitty 07-31-2010 01:03 PM

Quote:

Originally Posted by SallyC (Post 678912)
Of course it's the LDN..;)

:cool: Of course it is.

Really, I do think it is the LDN working it's magic. I never expect to be "cured" but I will take the sx relief anytime! ;)

I'm glad you're better, too, Sal. With your better left side and my better right side we almost make a fairly workable complete person! :D

Jappy 08-01-2010 07:33 PM

I really believe that if it wasn't for the LDN I would be doing much worse then I am now.

If is wasn't for NT I probably would have never heard of it. As all of you know drs. donot advertise this or speak of it.

Here is a good one with my neuro, when I last went to him I was leaving
and said that I would call if anything gets worse. He answered "Don't bother there is nothing we can do for you". I could not believe what I had just heard I know he was mad that I insisted on the LDN and since then he has been cold as ice. My primary got me an appt. with a new neuro. Half these drs. think that they are GOD and have complete control of our lives. Also he
hates the fact that the patient can look up so much on the computer and then question him about it.

LDN has helped me in many ways with the ms. I know it is not a cure, but at least I have gotten more relief with it then the Rebif that I was on.

JAPPY :hug:

EddieF 08-01-2010 07:42 PM

My last neuro dumped me for being persistant. He's too old should retire.
Went to another a friend suggested and I still want to lay him out. SO rude he was.
The one I have now I love thanks to this site. Thankyou.

EddieF 08-24-2010 04:26 PM

Endorphins
 
If LDN works because it tricks the brain to increase endorphin production, what about a drug that increases endorphins? Anxiety meds?

SallyC 08-24-2010 07:01 PM

Nobody knows, exactly, why LDN works. It just does. :)

If it were just a matter of raised endorphines, then vigorous exercise would work. But it doesn't.

Eddie, you are on many new meds and that's great, if they're all working, but how do you know what's helping what? I'd be a bit confused too.

Hang in there, we are with you.:hug:

EddieF 08-25-2010 12:54 PM

Since you mentioned it, I always feel better (will have to pay more attention to numbness) after a good fast breathing aerobic workout. Anyone else? Asked neuro if there's a measurement for endorphines and he said not really. It's experimental at best.

SallyC 09-09-2010 09:58 AM

Quote:

Originally Posted by EddieF (Post 688500)
Asked neuro if there's a measurement for endorphines and he said not really. It's experimental at best.

They have done comparisons, I have been told (don't have a link), that show Endorphines count is low in PwMS.

SallyC 09-09-2010 10:08 AM

Reporting in....I don't know if it's the LDN or the Prozac, but I have used my last weak little nerve, in the past week or two, with Scooter problems and the Dreaded Repairmen. :cool::eek::mad:. AND.....I've survived to tell about it, without a flare. I'm not saying if the repairmen did. :D

I think I had a little of God's help too.:hug:

So, how are you all doing? Any good LDN stories?

Check in...:grouphug:


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