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-   -   LDN Information & Check-in 2 (https://www.neurotalk.org/multiple-sclerosis/71392-ldn-information-check-2-a.html)

Lady 10-15-2010 11:07 PM

Hi Tulips,
When I recently hit my head it caused nerve pain in my neck, I banged the side of my hard. It knocked out the alignment of the natural curvature of the C-spine, just enough to impinge upon a few nerves.

It hurts more in the late evening, after daily use. But in seems that the LDN does help it during the night, and most of the early hours of the morning. It dulls my other pains too, but I am not sure if they are nerve or muscle related. But since nerves are attached to muscle it might help.

What do you have to lose by trying it? Nothing? If it works then you benefit. Neurontin and Lyrica were supposed to help with Nerve pain but did nothing for me when I needed it.

I had Lumber nerve pain and Ultram (Tramadol) took the edge off of it, 15 years ago. I still needed surgery anyway for a spinal cyst that was compression the cord and the nerves branching downward, over time as it grew. It gave me a sciatic-type leg pain as that is a nerve. The Sciatic nerve.

There wasn't LDN back then. It think by LDN increasing the endorphins, the feel good hormones, that helps me endure most pain issues. The burning feet and MS hug are not really helped. I don't know the cause of those, just MS related, each dr has an opinion. Lol

But pain is pain. Central, regional, or neuropathic. Try LDN. It is cheap and can't hurt you in the low dose that it is taken. I have taken Ultram a few times with the LDN, no problem.

Call Skip's pharmacy, if/or you get a script. He might be able to help answer your questions. Good luck to you and feel better. :)

EddieF 11-11-2010 08:22 PM

I read LDN helps rid the brain of excess Glutamate. This follows..

"Thus, while the Mayo researchers propose finding ways to block glutamate, the benefits of low dose naltrexone and beta lactam antibiotics lie in their ability to reduce glutamate excess"

I was looking into amino acids to boost growth hormone to heal me quicker from exercises. Glutamine is what's in 1 of the combo pills. The other is L-Ornithine + L-Arginine.

I never found any one that could tell me the difference between Glutamine, Glutamate, Glutamic Acid.
Glutamic Acid = 1 of the 4 Copaxone ingredients.
Glutamate = no good by what I read for us.
Glutamine = ?

SallyC 11-11-2010 09:07 PM

Another reason that LDN is a good thing..:D

Lady 11-12-2010 03:15 AM

Eddie, you're really getting good at this research stuff. I wish I could help you but I am still feeling a bit sick from my recent infections. Yucky..sleepy.

My brain is so foggy, I'm not functioning on all cylinders. I napped most of the day, now I'm up with the night owls. :o

I am still taking my LDN, it is still is helping me. :)
later..

daisy.girl 11-15-2010 10:22 AM

Medication question
 
Can anyone tell me if it is okay to take my LDN, Neurontin and Zanflex at the exact same time? I normally have taken my LDN and Zanaflex, but now my neuro has added the neurontin.

I take them around 10:30 to 11:00 PM
Just wanted to make sure I can take all of these in the same mouthful!!

SallyC 11-15-2010 03:16 PM

Quote:

Originally Posted by daisy.girl (Post 716296)
Can anyone tell me if it is okay to take my LDN, Neurontin and Zanflex at the exact same time? I normally have taken my LDN and Zanaflex, but now my neuro has added the neurontin.

I take them around 10:30 to 11:00 PM
Just wanted to make sure I can take all of these in the same mouthful!!

Call Your Chemist= Skips and ask. I would separate them, but thats me and I didn't like Neuronton..:D

daisy.girl 11-15-2010 05:10 PM

Quote:

Originally Posted by SallyC (Post 716391)
Call Your Chemist= Skips and ask. I would separate them, but thats me and I didn't like Neuronton..:D

Skip is my chemist....so I should call.

How much would you separate them?

Why didn't you like Neurontin?

Lady 11-15-2010 11:59 PM

Hi Daisy,
I would check them out with Skip too. I weaned off of Neurontin to go on LDN. I was up to 3600 mg of Neurontin and it stopped helping me. I took Neurontin for 5 to 6 years. I had to wean off very, very slowly. It is for sensory symptoms, and is sleep inducing for some.

It is really for Epilepsy but used off-label for MS.

Some people take small doses. What dose are you starting on? It is addictive, believe me. Your body craves it after a while. Some people can't take it at all.

If you decide to take all three. Please space them. JMO :)

daisy.girl 11-16-2010 07:19 AM

thanks guys...

I am taking the Neurontin for seizures, as well, my neuro thought they would help the terrible leg pains I have at night. The Zanaflex makes me a little relaxed, but really does not touch my leg pain.

I just started the Neurontin one week ago, I am taking 600mg 2xday, but will be working up to 900mg 3x day (I think)

My zanaflex is 4mg.

I am trying to figure out the best way to take them all. ...how to separate them?

SallyC 11-16-2010 12:51 PM

I just didn't like the way it made me feel, kinda groggy. I was taking it for feet burning. I didn't have to wean off it, because I was still on the low dose and didn't take it for that long.

Do you need both the Z and the N? Maybe the N would be enough, if it did it's job?:hug:


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