Hi Sally and Lady,

Thanks for your warm welcome!

I find the LDN seems to help me a little with energy, intitally it helped with pain too. But not enough energy support. I just upped the dose to 3mg last night and hopefully it will help more.

Thanks for the link Lady! I've been to the site and also read a book about it. It is the most hopeful stuff I've read about a med in a long, long time. :)

Do you find that you wake up at night from it? At some point in the night I wake up with a surge of energy in my body but my mind is really hazy. I fall back to sleep fortunatly. I try not to take it until right before I go to bed, hoping that the endorphin surge will occur closer to morning so I can benefit from it while awake.

-Hazzell

Hi, I had an odd episode today- I'm wondering if this could be connected to the LDN.

I was fine and then had stomach pain, nausea, lightheaded, hot and cold, weak and felt like I was going to pass out. I was at the dr office, fortuneately, so was able to lie down there for a while and with time and a litte food and water, started feeling well enough to get home.

I've had these episodes before but not for a while. I'm trying to sort out the many variables that may have contributed to this and am wondering if anyone has experienced a reaction like this as a ldn side-effect or as part of the adjustment process?

(A couple nights ago I increased from 1.5mg to 3mg)

Thanks,
Hazzell

It, most likely, wasn't the LDN, unless you are allergic to it. Probably a bug going around or lack of food, water, sleep etc.

Feel better..:hug:

I agree with Sally - probably a combination of low blood sugar and dehydration. Way back, before I found out (officially) that I had low blood sugar issues, I would have episodes like you described. I didn't get the stomach pains, but that would go along with hunger. You said you improved after a little food and drink. I usually have some nuts or a granola bar with me in case I'm going to be late for lunch/dinner. Low blood sugar can be affected by a lot of factors besides simply not eating.

I think LDN leaves your system pretty quickly, so any ill effects would probably have happenned sooner.

I hope you figure it out - those feelings can be scary!

C

I get that too with my low blood sugar, like you do Carol. I carry sugary sweets with me. Lol

Hazzell, I don't know if that is your problem, have you had your blood sugar checked? You also had a brain injury, so that could do weird things to your body too. You could lower your dosage back to 1.5 mg of LDN for a while and see how you feel.

I hope you feel better soon. It is so hard to tell what is caused by what. Meds or diseases. :eek:

Hiya, all. I’m just stopping by for an update. I am doing well, and we’re in Florida for a couple of weeks. We need to replace the flooring at the condo we inherited last July, and update some of the appliances. I am taking an artsy workshop at a wonderful art center down here. When I am on the road like this I sometimes forget to take my LDN, and I really can feel it the next day. I do stop by here (NeuroTalk) often to keep up with everybody’s goings-on.

Peace

Nice to hear from you Marion.:) Have a blast in Fla!:cool:

Glad things are back to normal (or whatever that is) for you, Marion. Have fun in Florida. Wish I were there, too. I'm tired of the snow and ice and I'm just up in GA!!

Hi,

Thanks you all for your help in sorting this out! I defintely have blood sugar problems- hypoglycemia. My blood sugar doesn't go up that much but it swings quite low and fast. So I'm mindful of this as well as my tendency towards low and dropping blood pressure and have something with me and am careful about my water intake. Although, I feel like I'm usually not drinking enough no matter how much I drink.

Blood sugar may have contributed in some way but I think in large part it was a problem with blood pressure dropping fast. I have a tendency towards this and I think the LDN combined with other meds that can have a blood-lowering effect plus getting up too quickly after an osteopathic manipulation, all resulted in the experience I had.

I lowered the LDN to 1.5mg and also went off of the other meds (sonata and ativan). I'm finding that it's really hard to sleep and the LDN seems to be making my sleep lighter and more fragmented. I can't take all the meds together because it creates too many blood pressure problems, fatigue and brain fog- even in the day. I'm very sensitive to side-effects.

Has anyone else experienced difficulty sleeping due the LDN and do you have any suggestions on what to do about it? (I also take Mag Citrate, 5-htp and do relaxation practices to help with sleep) Also, the benefits seem to only last a couple hours in the morning for me- is there a way to extend it?

I really need this medication to help me (and I think it is to some degree) but and am trying to figure out a way I can experience it's benefits without the difficulties. :)

I'm talking to my dr tomorrow and am hoping he'll have some ideas.

Have a good night and thanks again!
-Hazzell

Sooooo....

What did the Doc say?