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-   -   LDN Information & Check-in 2 (https://www.neurotalk.org/multiple-sclerosis/71392-ldn-information-check-2-a.html)

Lady 03-15-2011 09:37 PM

Eddie, don't give up on it even if you have a few side effects like waking up in the middle of the night, colorful dreaming, or some minor other thing. These go away over time. It means it is working. Best of luck to you. :)

EddieF 03-16-2011 01:19 PM

Thank you Lady & i'm actually looking forward to the dreams :)

EddieF 03-17-2011 11:13 AM

I didn't sleep for ---- last night after taking it. Tomorrow i'm taking it during the day & see if it gives me energy.
ZZzzzzz....

Kitty 03-17-2011 12:31 PM

Eddie, it messed with my sleep in the beginning, too. Especially when I upped my dose to 4.5 mg. I just toughed it out and after about a week it settled down into the pattern I'm still in. I napped alot during those days, too. Basically, I slept whenever I could. Now, I'm still up and down throughout the night but it's a schedule I can live with and I quite often nap during the day.

SallyC 03-17-2011 12:45 PM

Quote:

Originally Posted by EddieF (Post 753789)
I didn't sleep for ---- last night after taking it. Tomorrow i'm taking it during the day & see if it gives me energy. ZZzzzzz....

It doesn't work that way Ed. Go back to the LDN site and read the instructions.:)

roadaction13 03-17-2011 04:10 PM

Quote:

Originally Posted by Lady (Post 753321)
Eddie, don't give up on it even if you have a few side effects like waking up in the middle of the night, colorful dreaming, or some minor other thing. These go away over time. It means it is working. Best of luck to you. :)

um, how long will it take for these dreams to subside? they are so vivid they are tiring!

JD

Kitty 03-17-2011 04:24 PM

I still have them. I've gotten used to them but at first they were a little tiring.

Eddie, Sally's right. Taking LDN during the day doesn't provide the benefits. If you can tough it out for a little while you'll be glad you did.

EddieF 03-17-2011 06:20 PM

Thanks all but I exercise/workout way too hard during the day to feel like this. I'll try it during the day for kiicks anyway cause I know, I actually tell people at group when to take it.

My question's why not take a drug that increases endorphins? Tell me how it wouldn't be as good if a higher level of it is what does the majic. I'll ask dr tomorrow.

Lady 03-17-2011 06:37 PM

Eddie, I tried to get up to 4.5 mg of LDN, but never made it. I did 1.5 mg for ten days then when to 3.0 mg and have stayed there. Going up to 3.0 mg was a big adjustment for me, sleep wise and dream wise.

Our bodies are different and react to meds different. We make endorphins while we sleep. Example: If you were a night worker, you can take it in the day before you sleep during the day.

I don't know if it works the same, taking it during the day and sleeping at night???

Perhaps take it earlier in the evening and then go to bed? JMO

roadaction13 03-17-2011 07:56 PM

I'm thinking of going from 4.5 (which I started at, at new year's) to 3 - how will i know if it is working or not at the lower dose? I'm on Tysabri as well, so I don't know if I can really tell what the LDN is or isn't doing, though I think it has helped with fatigue.


Quote:

Originally Posted by Lady (Post 753936)
Eddie, I tried to get up to 4.5 mg of LDN, but never made it. I did 1.5 mg for ten days then when to 3.0 mg and have stayed there. Going up to 3.0 mg was a big adjustment for me, sleep wise and dream wise.

Our bodies are different and react to meds different. We make endorphins while we sleep. Example: If you were a night worker, you can take it in the day before you sleep during the day.

I don't know if it works the same, taking it during the day and sleeping at night???

Perhaps take it earlier in the evening and then go to bed? JMO



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