Hi! My doctor and I decided that since the LDN is really disrupting my sleep and I don't need the LDN for immune strengthening purposes (I don't have MS- I have a brian injury caused by infection decades ago) that I'll try taking it during the day. We're hoping this will help.
Thanks for asking!
-Hazzell

I am trying to get back on LDN (keep taking only 1.5 mg now) since I had the CCSVI procedure (like surgery with no outside cutting) more like a colonoscopy type procedure.

Anyhow, getting back on LDN is fighting with my Coumidin (blood thinner). So I take it three hours before bed or I have sleep issues too --which I had stopped having two years ago after I got used to the LDN and that side effect.

Some people have this problem. Maybe other meds or their circadian clock is mixed up.

The fragmented sleep is a good description.

Hi Marion .. waving hello

I’ve lost my LDN doctor! I can’t find him anywhere. His name is Kevin Krembs, and he is from Indiana. His old number, and any other numbers I can come up with for him are no longer in service. Does anybody know where he went? The last time I refilled my Rx with Skip, Dr. Krembs gave me a refill that would cover me for a year, and he didn’t even charge me for the phone consult - or at least I don't remember seeing the charge on my credit card. He was always so very helpful. Dagnabit!

Perhaps it is time for another doctor. Does anyone have the updated LDN doctors’ list? I’d love to find someone here in Connecticut, but I don’t suppose it really matters.

Thanks in advance for your help.

He wasn't one of M. Jackson's Docs was he?

Dr Sullivan is in Penn., Is he close enough?

Ask Skipp, also. Good luck.

I have been on LDN for about 3 months, but at first was also taking 20 mg/night of amitriptyllne, which is sedating.

I'm working on getting off the amitriptyline, and am now down to 10 mg.

It's been about 2 weeks on the lower dose, and I've found that the vivid dreams that started when I started the LDN have become, well, more vivid and sort of tiring. They aren't nightmares, but hectic, fast-paced and do have some negative/disturbing elements.

Have people found that the dreams stay just as vivid over time? I'm on what I think is a relatively high dose - 4.5 mg - and am thinking of asking my dr. about going on lower dose to see if the dreams calm down.

It's hard for me to tell if the LDN itself is helping.

I already had found relief from fatigue from low-dose testosterone cream, and I'm on tysabri so i can't tell if the LDN has helped to contribute to my positive MRI results (no cervical or brain active or new lesions, though i still have to get thorassic MRI to see what's up there).

I am still having pseudoexacerbations and have persistent neuropathy in feet and legs.

any thoughts?

My doctor is in Rhode Island - he has a waiting list for new patients but if you are nearby, maybe you'd be interested - he is an MD and also a naturopath and I've had a very good experience with him.

I have a new 4.5mg script to fill and would like to try the mail order in south florida Skips? If that's the best place, someone please p.m. me phone # or alternative pharm.
Thanks
ed

Done, the PM was sent to you.

Me too...lol

Thanks Lady & Sally. Ordered 3 month supply of 4.5mg = $65 shipped. Done