I don't think that would hurt one bit RD. I was on 3mg for 3 yrs before I went up to 4.5. I don't have problems sleeping but I do still have the vivid dreams.:eek:

When you are on other modulating drugs, it's hard to tell when LDN kicks in. Go off of it for awhile and see if there is a diff???

Good luck to you.:hug:

I went off LDN to have my CCSVI procedure so I could take their IV pain medication during the procedure and have it work. :Zzzz:

Then I was on some new medication because my blood pressure was tipping over moderate. The BP medication made me dizzy. My BP was falling too low and too fast. I was on Warfarin for a while too.

I kept trying to get back on my LDN but had issues with it because of the meds. I hate medication unless it is a must. :)

I could tell I was off it. As soon as I stopped both the meds, I had no problem getting on the 1.5 mg and will go up soon to 3.0 mg again.

If you find LDN interferes with your other meds, then you have to make a choice. Probably stop the LDN and see how you feel. If it is new to you, then keep it up. Play with the dosage and/or timing.

I have no problem sleeping 9 hours in a row with no nap. The CCSVI procedure?-probably- or the LDN? The LDN takes away all my aches and pains. Which is great because pain meds don't work with LDN, or so they say.

I have taken pain meds with LDN and they work. I don't think we take that big a dosage to prevent a strong pain med from to working.

I just didn't want to find out the hard way. :eek:

So true Lady!

I spoke with Dr for a hr (nice guy) but forgot ldn & bone density test! I didn't try it yesterDAY because I got pneumonia vaccine & my daily workout's enough load. Maybe today. And when I slept very well the night after I didn't from ldn, I remembered my dream..still do. I'm on Ty as well for the one who asked about doing both. Ampyra too 1x/day. Testosterone too but who's counting :) Yes that combo's enough to keep you awake without exercising..but I do.

Quick question. Does anybody think it would cause a problem if I only took 3.0 mg as opposed to the 4.5 mg I have been taking?

I'm about to run out of 4.5 mg capsules but I have a pretty good supply of 1.5 mg capsules. The cost of the phone consult plus the prescription will put a strain on my budget right now. I'd like to take 2 of the 1.5 mg. capsules (total of 3 mg) until I can make a phone consult appointment to get my script refilled. I guess I could take 3 to keep my dosage consistent with what I take now but I wanted to make my supply last as long as I could.

Do you think it will be a mistake to lower my dosage? I'm already having sx issues (numbness) and don't want to make it worse.

To tell you the truth, I don't know. Call Skip and ask him...Maybe he'll even give you some free samples..:):hug:

Great idea.....I hadn't even thought of doing that. :) I'll post what he tells me.

Ready to lower my dose
 

Here's my update: I described my disturbing LDN dreams to my best friend, and she said "um, those are nightmares." and I had to admit, she was right...

Also my neuropathy has been worse, even though my MRIs are better, so I'm wondering if it could be contributing to that as well?

So I'm dropping my dose. Will go to 3 for a while and see how it goes...

I've only ever gone up to 3 mg. I started at 2 mg for a month and then went to 3. I had so much improvement in my heat intolerance (it was summer) that I just decided to stay there and keep a higher dose as an option if I feel like I need more. So far so good and I'm coming up on 2 years.

C

checking in
 

You may remember that I was unable to refill my LDN Rx back in early March because my doctor had disappeared. I was about to go on an extended ski trip out west with my hubby, and refilling the LDN just didn’t get done. I decided that I’d go on vacation without LDN. I figured it would be a good test to see if LDN was still helping me out with my MS symptoms. Well, you can consider the test a total success, since I now feel awful! I can’t wait to get back home and get hooked up with my LDN again. I am semi miserable. I can’t believe the fatigue! I can’t believe the pain level! I had forgotten how awful my life was without LDN!

I figure this experiment was in order. I had been on LDN for over three years, and sometimes drugs become less effective the longer you take them. Well you can consider me convinced. If it were not for LDN, I’d be in a power chair much if not most of the time. I am miserable, and if not for this experiment I’d still be wondering.

LDN rules!