Kitty,

I'll bet you're right about the capsule itself with the colour. Skip probably colour codes the different strengths that way. My pharmacy goes with clear for each different strength. (Both the 2 mg that I started out with and now the 3 mg are clear)

Eddie said he broke his open and it was pink. That's what I was surprised about. Maybe his pharmacy colours the powder? or the actual 50 mg pills are pink?

C

I just looked at naltrexone 50mg on walgreen's site and they're beige. Now you's have me wondering. A call to Skipps will answer it and yes it's pink chunks, fragments, powder inside my 4.5mg.

I took a whole 4.5mg before my 1.2 mile push in wheelchair today & also took a 5mg Marinol (synthetic thc) and i'll report that for those that don't take ldn cause they're affraid it'll block pain meds, i'd give it a try. Now lets hope it doesn't interfere with sleep tonight.

I always get 1.5 mg from Skip's. Script says 3 capsules at bedtime. I can play with the dosage this way but it costs more for more caps.

I take two which is 3 mg. When I used to get the 1.5 mg with Avicel filler in a clear capsule it was pink. Now my clear capsule with sucrose (Domino sugar) is white.

I opened the the ones that were pink and put in applesauce on a tablespoon to get it into me faster. Capsule take time to dissolve for me. It was pink inside, so I think the Avicel is pink.

Fillers of Lactose is white and so is sugar. If you get Calcium carbonate that does not work as a filler, not absorbed is whilte. And never get a slow release formula.

Old picture of Avicel capsules (pink). Video doesn't work just the story.

Thanks Lady & folllow up from yesterday - I had spasms all through the night. I know opiates stop spasms from when I had i.v. something so possibly the 4.5mg blocked too much. I fell asleep quick, but woke up 4, 5, 6 ect. The marinol i had left over from last yr & was a test.
Busy day today just had to say that about spasms which I read once someone said same thing when they take too much ldn.
ed

Eddie, I got spasticity in my legs the first time I increased my dosage from 3.0 to 4.5. I had to stop and try it again several times before my body finally tolerated it. Anything more than 4.5 will definitely cause spasticity.

Hi,
I talked to My Neurologist, first time since dx. He said he would be willing to let me try LDN. He says he has one patient on it and they are doing fine. He is checking on the dosages and said it has to be compounded? I also have Hashimoto's thyroiditis and take medication after I had the one side removed because of a solid nodule. He also put me on clonazepam, for my tremors and leg tightness. Also got another prescription for physical therapy, so I can try out the other one, to see if they have any ideas.
He talked about Lyrica, I told him it made me hyper and I fell easier on it. He made me walk, and he said he didn't want me walking any faster than my dizzy slow walk.
He also said to try the clonazepam first, then he would let me try ldn. After next Mri, which I think it will be November, if any new spots he would talk about inferons.
I really like him and I can tell he is listening to me. If I just could have saw him in 2007 when I first had lesions, and more new lesions, maybe we could have got some of this stopped.
Nothing I can do now, He says the dizziness is here to stay. Fun, Fun, it just bothers me when I am trying to do all my chores at home. So much for my relaxing retirement in a few years.

I know how you feel, Deb. I sort of wonder how I'll be in 10 or 15 years if I have this hard of a time getting around now. But, I can still walk....albeit slow and wobbly....so I'm not complaining. But I can't help but think of the future.

I'm so glad your doctor is open-minded enough to let you try LDN. It can't hurt and it might help. I can't figure out what these doctors are so scared of with LDN. Are they afraid it might just work and they might have to admit that a med that is affordable, doesn't produce nasty side effects and doesn't make doctors rich in the process is working?

Hi Deb -

Yes, it does come from a compounding pharmacy.

I use Bayview Pharmacy:
http://www.bayviewrx.com/

They will ship it to you.

Also, I have taken LDN and clonazepam at the same time; they are very different drugs and do not seem to interact with each other.

Good luck!

Yeaaaaa Debw. Welcome to the club.

Got an E-mail from Bayview Pharmacy. Sounds like if I get a prescription, I can just fax it to them and they can take care of it for me. They sounded very nice.
Thanks for the info!