I am waiting, anxiously, for my ldn to arrive from Skipps anyday now but it is probably bogged down with all the X-mas gifts & Holday cards; That's o.k. too 'cause I am a fan of all things that make you feel goood Reading this ldn post has me jazzed since there isn't much else this secondary progressive gal can take; had been on Tysabri for 3 years but I don't believe it did much the final year.

I'll be checking in for advice when I get my pills but just wanted to give a "Howdy" to my future good friends

Cheers,
Debra (aka Deb)

Hi Deb and welcome!!

Welcome Debra, glad to have you in our club. I hope the LDN keeps you feeling as well as it does for me. Not a cure but helps a lot with our symptoms and keeps the big bad MS from progressing too fast....at least for me.

Yes, me no like progression either! Really looking forward to some cool dreams...

Well, I've been on ldn for a few weeks now and just bumped up my dosage to 2 pills a night. Everything is fine, of course, but I am wondering WHEN I will feel possible benfits for things like spasticity, etc. Do I need to be at full dosage b4 that begins to happen?

A curious & antsy newbie,
Deb~

So Deb, does that mean you are on 3mg? You should be feeling better on that doseage. Stay on that for awhile and see how you do. Some people stay on 3mg and some feel better on 4.5mg. Its an individual thing.

Good luck!!

I've been researching ldn cause everything else is so expensive and seem to have drastic side effects at least significant enough to be listed. I'm wondering if anyone has experienced any. I can't take the shots and can't afford Gilenya with a legal occupation.

Yes, Sally, I am at 3mg and starting to feel more tired than usual! My thinking is that my body is getting used to the higher dosage and it will even out soon. But that is just MY thinking and these days thay can NEVER be trusted Deb~

Oooh, how I love this site: Why, you ask? Because I was reading old posts and discovered how some folks were feeling nauseus/tired and how that related to their low blood sugar.
Since one of my dogs is a diabetic, I used her glucometer to give myself a blood test and it was a tad low (73). So...I finished the box of Christmas candy (2 pieces) and I feel better. So much for New Years resolutions

Deb~

Hey there, Sally & crew: I am thinking of goiong back down to 1 pill/day as I had no side effectsfrom just one pill. My husband and I have a trip planned to Mexico in less than 2 weeks and I'll need all my energy possible for the journey.

Would there be anything negative to reducing the dosage until after our vacation? When we get back, I will be able to stick out whatever side effects ldn has to give me until they subside Thanks, Deb~