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-   -   LDN Information & Check-in 2 (https://www.neurotalk.org/multiple-sclerosis/71392-ldn-information-check-2-a.html)

Twinkletoes 02-18-2009 12:26 AM

Quote:

Originally Posted by Lady (Post 467385)
Thanks for the Biogen article Flutemaker. :)
I don't trust Biogen for some strange reason. ;) They do a lot BS. First they said they were going to give humans mouse DNA??? Now they changed it to human DNA in the new drug. We will have have whiskers and tails at this rate. :D

Whiskers? I'm perimenopausal and already have a few of those! :D (Hope I don't grow a tail, too!) :rolleyes:

Jodylee 02-18-2009 10:36 AM

Hi all :)! I've been on a 3 mg dosage for more than a week and I've noticed a huge increase in physical energy :D!! I'm so happy! I've been mia lately. I hope everyone is doing well :).

SallyC 02-18-2009 12:19 PM

Quote:

Originally Posted by joellelee2000 (Post 467546)
Hi all :)! I've been on a 3 mg dosage for more than a week and I've noticed a huge increase in physical energy :D!! I'm so happy! I've been mia lately. I hope everyone is doing well :).

That is great to hear/see, Joelle. If I had more energy I'd be here a lot less, too..:D

lady_express_44 02-18-2009 02:54 PM

Great news, Joellelee!

Have you gotten past the withdrawals, etc. now too? Pain level is ok?

Cherie

Lady 02-19-2009 02:28 AM

Quote:

Originally Posted by Twinkletoes (Post 467388)
Whiskers? I'm perimenopausal and already have a few of those! :D (Hope I don't grow a tail, too!) :rolleyes:

I am postmenopausal and have those goat hairs pop up on my chin.:rolleyes: Like one day nothing is there and the next day this 1/2 inch white hair pops out. I think they hide under the skin and jump out when you have a party or someplace to go. They hurt when you pluck them too.:rolleyes:

When I am on steroids forget-about-it! Pluck, pluck.:D

Now Twinkletoes..about those tails. Hmm :) I'm not even looking.:cool:

Lady 02-19-2009 02:39 AM

Quote:

Originally Posted by joellelee2000 (Post 467546)
Hi all :)! I've been on a 3 mg dosage for more than a week and I've noticed a huge increase in physical energy :D!! I'm so happy! I've been mia lately. I hope everyone is doing well :).

Great news Joellelee. You did it. You got off that pain med too. I am happy to hear that you have more energy. I think LDN helps with some types of pain too. IMO.

Don't spend all that energy too early in the day. Spread it out and make it last. I overdid it a few times cleaning. I love to clean and had a long to-do list. I have learned to enjoy this new found energy.

Congratulations :hug:

Jodylee 02-19-2009 09:00 AM

Cherie - I got through the withdrawal ok. But...since nothing else works for the pain, my neuro said for me to go back on them and just take them when I'm having a really rough time. They still work for the pain even with the LDN, yay! Lady - I hate to clean :D so I don't think I'll over do it that way! :D

lady_express_44 02-19-2009 02:04 PM

To the best of my knowledge, the only issue with using narcotics and LDN is that the LDN might make the pain relief less effective. The main concern with that would be that a person may end up taking TOO much, OD'ing, etc.

Otherwise, I don't think there is any contradiction.

Glad you are able to do both, and you are getting what you need from both remedies.

Cherie

Bearygood 02-22-2009 12:48 PM

I posted in the thread down below that references the article in the NMSS Momentum magazine but I wanted to mention it here as well. You can download the article here: http://www.nationalmssociety.org/mul...-09/index.aspx It's in the Healthy Living section.

I would love to hear reactions to the article from those on LDN. Maybe it's just me or that he's speaking in that conservative doctor tongue but I thought it was a little bit of a downer. There were also some things he said that LDN didn't do that I've seen anecdotal reports about to the contrary.

Or...maybe it's just me overtired and under-caffeinated!

SallyC 02-22-2009 01:50 PM

BG, thanks for posting.:) I read the entire article and it is what is typically reported by Dr Bowling. He is a Doc and a scientist so anticdotal reports from peeps with MS is not going to sway him or the NMSS..:rolleyes:

For us who take LDN and find it helpful in fighting the effects of MS, are a study all to ourselves..:cool: The proof is in the pudding..:D

Studies on LDN for MS are continuing and depending who what where and when these studies are done, are showing the Pros and Cons of it.....mostly Pros very little Cons.:)

They can keep testing it till the cows come home, I've been on LDN six years and my DD, with MS, has been on it, since she was DXed, 4 yrs ago.

I remain stable with no worsening of the disease and DD is in remission and the only time her MS sx cropped up is when she stopped LDN for a month. As soon as she went back on it she went right back into remission..:)

So that's my neoscientific report....who you gonna believe..LOL


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