have been on LDN maybe 6 years - stopped it so i could take a pain med for my shoulders - no difference - I thought it was helping me sleep - nope - was not helping at all - stopped calling for refills :)

Sorry KM.:hug:

Is it ok to stop LDN temporarily to take pain meds? I have to take Tylenol 3s for a bit.

Yes MSbelle, it is ok.:)

Somehow my prescription for LDN was mixed up and I was without for three weeks........I do have it again now. However, most of the MS symptoms came back after being off it for a week or so, bladder was worse, pain, weakness, sensitive to temperature change, etc., etc., etc. Sometimes I've wondered if it was really doing anything and now I know. Besides holding this monster at bay for so many years, it really helps in my day-to-day living. I'm on it for life!:)

Me too, Judy!!!:hug:

How many of you are still on LDN and any Newbies on LDN now.?
I'm on for 12 yrs now and don't know how I ever survived the dang disease without it.
I still have MS, but for the last 12 yrs, I feel "it does not have me, by the ****s..:D

I've mentioned this before, but do you all notice how much your hair and nails
grow, so much faster? I am forever trimming my hair and filing my nails. Also,
I've noticed how much faster a wound heals and how much faster an illness
subsides

LDN may not be a cure for MS or anything else, but it sure does make me
feel better.:):cool:. It must be the raise in endorphins, huh? Us MSers are
usually low on endorphins and obviously we need them!!

I hope you all are keeping up with your LDN daily, even though you may be
taking one of the newer MS modifying drugs, as well. At the 4.5mg dose, it
will not hurt us and certainly may help in our fight to live better with our illness.

Best wishes for you all.:grouphug:

I've been taking 3 mg of LDN for close to 7 years. I don't notice any difference with hair and nails and I've always healed quickly so no change there. The life altering change for me was taking away the heat intolerance and having more energy. I don't "crash" the way I used to when I overdo it.

Whenever I slack off taking LDN, I begin to get more MS issues. Once I get back on track, they subside.

Has the cost gone down for you lately? When I began LDN, it cost approx $120 per 3 mths, now it's $66.50 for three months. (We only pay 10%)

Glad to hear you're doing so well Sally!

Carol

Anyone else? Am I almost alone here now?:eek::D

I know the doctor we used to use retired. Who is prescribing your LDN now?
I might be ready to give it another try..........