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-   -   LDN Information & Check-in 2 (https://www.neurotalk.org/multiple-sclerosis/71392-ldn-information-check-2-a.html)

SallyC 05-23-2011 07:29 PM

Whoopee, Marion..:D :hug:

debw 05-28-2011 08:17 AM

Just wondering if anyone on LDN also has Hashimitos. Been on my clonazepam for over a month now, was going to call and get my LDN on order. In reading the literature, it has a warning for people with Hashimitos, that it could improve it, so my levothoroxine dosage and thyroid may have to be watched closely. Have been on thryoid med, since my surgery. Pathology said was Hashimitos going on.
Just thinking to mention it when I call for LDN for prescription. It said I could get hyperthyroidism rather quickly. :eek:

Kitty 05-28-2011 08:23 AM

I take levothyroxine and just had my blood test so I could get my prescription renewed. It was fine......my PCP knows I'm taking LDN. I take a 100 mcg. each day and that has stayed the same for years now.

Lady 05-29-2011 11:53 PM

I'm on Thyroid meds. and LDN. Low Thyroid function with nodules and pain. The LDN has made the pain stop, TG.

I had to increase my dose, not lower it. I don't think it effects my Hypothyroidism. Yes, Hashimitos. It sounds more like a Japanese Motorbike. :D

I take 50 mcg M-F and 75 mcg on Sat and Sun. I think my Endo doc will increase it again. I just had my annual Ultra-sound and blood work.

Kitty 06-11-2011 09:26 AM

Latest LDN News
 
Julia Schopick, a writer and public relations consultant, who posts the Honest Medicine blog, has published a new book, Honest Medicine: Effective, Time-Tested, Inexpensive Treatments for Life-Threatening Diseases, now available online. The book describes in detail four safe, lifesaving treatments, including LDN, of which the public has little awareness because each has low profitability potential for big pharma.


http://www.lowdosenaltrexone.org/ldn_latest_news.htm

SallyC 06-11-2011 02:07 PM

Jolly good show, I say!

Thanks Kell:hug:

Lady 08-07-2011 11:20 PM

LDN check in time.

How is everyone doing with their LDN? Are you still getting benefit from it? Have you changed your dosage? Anything different happening since on LDN?

Give us a few words if you take LDN.

This thread in awful quiet lately.

I am back on LDN, which I stopped to have my CCSVI procedure. It took time to get back on it again, I kept trying but I had to go back to my sucrose (sugar) filler. The normal filler bothered my tummy.

I'm doing well, TG. I needed to know if the new improvements were from the CCSVI procedure, or the new improvements were from the LDN anyway. I have had improvement from both and wanted to keep up with the same program.

That's my update. How about you? :hug:

No DMD's for me, just LDN. :):):)

SallyC 08-08-2011 10:14 AM

Hi Lady..:) Happy to hear that you were able to get back on LDN and that you are doing well.

I am the same. Nothing new to report. LDN is still my best friend. I may have to add CCSIV, So that I feel as well as you..:D

Still waiting, in vain, for a cure..:rolleyes: In the meantime, LDN keeps me pretty stable for a mature woman..;)

Kitty 08-08-2011 10:19 AM

Nothing too much has changed for me. I've had a couple of flair ups so far this year.....but they both are sx I've had before......so does that count as an exacerbation? :confused: Why can't I remember this stuff? :o

I'm still on the 3.0 mg of LDN. I think next time I speak to Dr. S I'm going to ask for the 4.5 mg. I'm assuming it's the LDN keeping me stable for the most part. I'm too scared to stop taking it to see what will happen! :p I'm not rockin' the boat. :cool:

marion06095 08-08-2011 10:37 AM

I’m doing much better after getting back on the LDN. After that one bad heat exposure, I’ve taken to watching summer from the air-conditioned comfort of home. We’ve taken a few day trips up to the mountains in Vermont where I mostly stay in the air-conditioned van. That’s OK with me. I think I am observant enough to enjoy the beauty that is mere feet from the van. Also, I’ve always been a bit on the lazy side, so it works out nicely.

I’ve decided to take that cognitive neuro evaluation set of tests. I considered doing it before, but the co-payment was a bit steep. Now that I have better insurance I think I’ll go for it. I think the tests are several days in duration. I’ll keep you all posted.


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