Hi Kelly,
I know you were asking Cherie,but figured since I knew, I'd help you out with at least one of your questions. C spine is the cervical spine ( neck) only. Then there's the thoracic spine ( mid-back) and lumbar spine ( lower back). I hope your symptoms let up soon and you're feeling better quickly.
I don't think you're over -reacting, this MS stuff just completely sucks and we wouldn't be "normal" if it didn't get us concerned/anxious, what have you at times.

Thanks very much for the info. I'm wondering why my T-Spine and Lumbar-Spine weren't done.....I'd be interested to know how many spinal lesions I have. I already know I have brain lesions.

I'm sure this will all pass soon.....it's just the spasticity in my legs plus the skin sensitivity in my back and leg is driving me crazy! I just took 20 mg of Baclofen so hopefully it will kick in soon.

I'll never get used to this stuff.

I’m not doing very well. Remember how I was without LDN for a week? Well, on day 3 without LDN, I developed what I believe is Transverse Myelitis. I’ve now been back on LDN for ten days and the TM is still with me. It consists of burning (!) areas on my thighs and buttocks. When they aren’t burning, these areas are mostly numb. I also have bladder weakness, which is considered part and parcel of TM. I will never, ever, EVER run out of LDN again. This really stinks! If I call my Neuro about this, he’ll want to see me, and he’ll want to treat it. I don’t want it treated. I just want it to go away.

Marion, I have had the same sx as you except it's on my stomach, back and right leg. It feels numb but still hurts...if that makes any sense. I wasn't off of LDN, though. It just sort of happened. I hope you feel better soon!

I'm sorry, Marion. It's the changing weather, I tell ya.. I feel a little carpy, myself.

Hang on....Once the weather makes up it's mind, what season it's in, I think we'll be OK.

Kitty, your posts always catch my eye. The reason for this is that the two snuggly kitties .jpg in your signature was my avatar for many years. I have to say that you have wonderful taste in graphics.

I found this on the LDN website (www.lowdosenaltrexone.org) and wondered if anyone else takes thyroid meds? I take Levothyroxine and wonder if I should decrease my dose. I'm going to talk to my PCP about it.


Those patients who are taking thyroid hormone replacement for a diagnosis of Hashimoto’s thyroiditis with hypothyroidism ought to begin LDN at the lowest range (1.5mg for an adult). Be aware that LDN may lead to a prompt decrease in the autoimmune disorder, which then may require a rapid reduction in the dose of thyroid hormone replacement in order to avoid symptoms of hyperthyroidism.

I've seen tht wrning before, Kelly, but, since I don';t have a thyroid problem, diidn'y give it much thought.

You should ask your Doc....He'll mprobably just tell you to gt off the LDN.. I hope not, because LDN could be helping that condition??

Good luck..

Hi,
I talked to My Neurologist, first time since dx. He said he would be willing to let me try LDN. He says he has one patient on it and they are doing fine. He is checking on the dosages and said it has to be compounded? I also have Hashimoto's thyroiditis and take medication after I had the one side removed because of a solid nodule. He also put me on clonazepam, for my tremors and leg tightness. Also got another prescription for physical therapy, so I can try out the other one, to see if they have any ideas.
He talked about Lyrica, I told him it made me hyper and I fell easier on it. He made me walk, and he said he didn't want me walking any faster than my dizzy slow walk.
He also said to try the clonazepam first, then he would let me try ldn. After next Mri, which I think it will be November, if any new spots he would talk about inferons.
I really like him and I can tell he is listening to me. If I just could have saw him in 2007 when I first had lesions, and more new lesions, maybe we could have got some of this stopped.
Nothing I can do now, He says the dizziness is here to stay. Fun, Fun, it just bothers me when I am trying to do all my chores at home. So much for my relaxing retirement in a few years.