I'm sorry, Marion. It's the changing weather, I tell ya.. I feel a little carpy, myself.

Hang on....Once the weather makes up it's mind, what season it's in, I think we'll be OK.

Kitty, your posts always catch my eye. The reason for this is that the two snuggly kitties .jpg in your signature was my avatar for many years. I have to say that you have wonderful taste in graphics.

I found this on the LDN website (www.lowdosenaltrexone.org) and wondered if anyone else takes thyroid meds? I take Levothyroxine and wonder if I should decrease my dose. I'm going to talk to my PCP about it.


Those patients who are taking thyroid hormone replacement for a diagnosis of Hashimoto’s thyroiditis with hypothyroidism ought to begin LDN at the lowest range (1.5mg for an adult). Be aware that LDN may lead to a prompt decrease in the autoimmune disorder, which then may require a rapid reduction in the dose of thyroid hormone replacement in order to avoid symptoms of hyperthyroidism.

I've seen tht wrning before, Kelly, but, since I don';t have a thyroid problem, diidn'y give it much thought.

You should ask your Doc....He'll mprobably just tell you to gt off the LDN.. I hope not, because LDN could be helping that condition??

Good luck..

I'd lower my thyroid meds before I stopped LDN!! I've been really short of breath here lately and that is one sign of hyperthyroidism. This morning I didn't take my thyroid meds (for hypothyroidism) and I can already notice that I'm breathing easier. I'll try not taking them again tomorrow and see if that continues to help. If it does I'll probably just cut my thyroid med dosage in half and see how that works.

Boy.....Can I type or not..

Well.....I didn't want to say anything but since you brought it up......NOT!!

I was seen at my Neurologist’s office yesterday. Since it had been just about a year since I had seen them, they did a pretty thorough exam. This included a “gate analysis” that is taken by walking on this weight-sensitive mat on the floor. The mat is probably 20 feet long, and it is hooked up to a computer that analyzes every little nuance of weight bearing on each step you take, as well as the profile of your gate. A year ago (pre LDN) I had the same tests, and it was really interesting seeing the change. The PA noted improved leg strength, eye coordination, and balance. She seemed to be only mildly pleased with the improvement, though I did see a slight smile behind her poker face. What I really wanted to hear her say is “OMG! What an improvement since you started the LDN.” But since I was refused an Rx for LDN by this doctor, I suppose I expected too much. As I left, the PA said that she was going to bring the test results to my Neurologist’s attention. She hesitated a bit, and then said “He’ll probably want to see this for himself.”

Next week I go for may annual MRI. That should be interesting as well.

Hi,
I talked to My Neurologist, first time since dx. He said he would be willing to let me try LDN. He says he has one patient on it and they are doing fine. He is checking on the dosages and said it has to be compounded? I also have Hashimoto's thyroiditis and take medication after I had the one side removed because of a solid nodule. He also put me on clonazepam, for my tremors and leg tightness. Also got another prescription for physical therapy, so I can try out the other one, to see if they have any ideas.
He talked about Lyrica, I told him it made me hyper and I fell easier on it. He made me walk, and he said he didn't want me walking any faster than my dizzy slow walk.
He also said to try the clonazepam first, then he would let me try ldn. After next Mri, which I think it will be November, if any new spots he would talk about inferons.
I really like him and I can tell he is listening to me. If I just could have saw him in 2007 when I first had lesions, and more new lesions, maybe we could have got some of this stopped.
Nothing I can do now, He says the dizziness is here to stay. Fun, Fun, it just bothers me when I am trying to do all my chores at home. So much for my relaxing retirement in a few years.

I know how you feel, Deb. I sort of wonder how I'll be in 10 or 15 years if I have this hard of a time getting around now. But, I can still walk....albeit slow and wobbly....so I'm not complaining. But I can't help but think of the future.

I'm so glad your doctor is open-minded enough to let you try LDN. It can't hurt and it might help. I can't figure out what these doctors are so scared of with LDN. Are they afraid it might just work and they might have to admit that a med that is affordable, doesn't produce nasty side effects and doesn't make doctors rich in the process is working?