Some good news concerning LDN.

Had a neuro appointment two weeks ago and after going through all the usual motions, he asked if I was still taking the LDN. Well....duh......of course. He also asked if I thought it was helping at all.......YES. A couple times the prescription has gotten messed up and after a week without it, my legs were worse, believe it or not, and also my bladder "issues".

He said he feels after having had MS for such a long time (19 years diagnosed, probable 13 before), I should be in worse shape!!! As I've mentioned before, I just wish he would have agreed to let me try it before I became SPMS being none of the injectables were tolerable for me. He also mentioned the clinical trial now being started for LDN and appeared all happy and telling me something new. Why don't they ever listen to us????

If you haven't already, try it, you'll like it!! It's also much cheaper and less painful than those awful injections!!!

And so much safer, too!

these guys could use a few more signatures. theyre looking for a million and so far they have 47.lets help them out a bit

http://www.thepetitionsite.com/1/fun...ials-in-Canada

its been kinda quiet so i guess ill give an update to how im doing on LDN.im back to work full time.have been for about 6 months or so. i work in an animal shelter with aggressive dogs. yesterday i mowed my lawn, edged the entire property,did 7 loads of laundry,vacuumed the entire house(two stories)and walked my dogs(one at a time)8 blocks out and 8 blocks back TWICE. then i made diner for my wife when she got home.all without naps and i didnt go to bed till about 1 am.all in all,the LDN rocks

Sheesh, Flute... It just ticks me off that I didn't discover LDN until I was already SPMS..

I am so tickled for you and may it continue forever..

Hi LDN people!

A while back I asked for info about LDN for my Mom. She is now on it and going through Skip's pharmacy and she absolutely loves Skip (or whoever she was on the phone with for 45 mins.!) At first she had problems finding a doctor to prescribe it and he even offered to help her out! Anyhow, my mother is feeling glad she is on LDN and seems lessed stressed out about having PPMS because I think she feels like she is trying to do something. I really think she has had MS for many years and it is now SPMS--she had some optic neuritis problems years ago and just never did anything about it. Although another doctor thinks she has Primary Relapsing MS.

But thanks for your help!

Natalie

I'm so happy that your Mom seems to be doing well on LDN, Nat. Ask her to come in here and talk to us, if she wishes..

I had a day like yours, flutemaker, and I topped it off with watching my daughter's ball game. I'm making a quick trip to the US tomorrow, and hoping to be back in time to watch them win "gold" in the tournament.

Certainly not every day is THAT productive, but these kind of days are something I never expected to see again, 5 or 6 yrs ago.

Cherie

BTW, Sally ... I was lucky enough to start just as I was transitioning from RRMS to SPMS. I've managed to hang onto the RRMS label another 4 yrs, so I consider myself lucky.

true enough, i still have bad days too. im not sure if its the MS or just me being lazy. but there are days when im far less productive. we'll see what happens over the next few weeks and months, i may be moving to another state soon as my wife looks for a new job. the stress she deals with will surely bleed over onto me, finding new doctors,will my van survive............yeah,we'll see what happens.