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Old 05-29-2009, 10:42 AM #1
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I'll jump in with the same thoughts as you Flutemaker. When I get a real good day, and accomplish more than I realized I could do, and without a nap, I forget I have MS too. I almost feel normal again too.
Lady, that's a HUGE accomplishment, and I'm so happy it's worked out for you too. For people who are fairly new to this disease, I think we might take the benefit for granted a little, or even perhaps doubt that LDN has made the difference (sometimes), but when you've had the disease a long time, you KNOW when it's working for you.

I agree with Sally though, that it would have been nice to get started earlier. I was in denial for a long time ... so even if I had heard of it sooner, I wouldn't have thought my life would be affected as much as it has.

I can live like this though.

Chere
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Old 05-29-2009, 05:22 PM #2
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It has worked extremely well for my Ulcerative Colitis too ....

Cherie

Funny you should mention your other disease, Ulcerative Colitis. Well not funny really, but interesting I must say.

I have another auto-immune disease, that is somewhat rare, and was told I was born with it. It is Collagenous Colitis. Biopsy colon confirmed.

LDN has stopped all my symptoms of this, thus the pain is gone too. It is not caused by being nervous or upset. It just is.


http://www.gihealth.com/html/educati...usColitis.html
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Old 05-29-2009, 07:06 PM #3
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I agree with Sally though, that it would have been nice to get started earlier. I was in denial for a long time ... so even if I had heard of it sooner, I wouldn't have thought my life would be affected as much as it has.

I can live like this though.

Chere

thats where im feeling real lucky, that i got on the LDN so early.one thing that still kills me is the LDN was available when my mother was alive and we knew nothing of it. and when i think of just how quick she went down hill.......

someone up there may like me afterall
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Old 05-29-2009, 11:14 PM #4
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I have another auto-immune disease, that is somewhat rare, and was told I was born with it. It is Collagenous Colitis. Biopsy colon confirmed.

LDN has stopped all my symptoms of this, thus the pain is gone too. It is not caused by being nervous or upset. It just is.

http://www.gihealth.com/html/educati...usColitis.html
I know you were concerned about starting on LDN because of other complications you have, but maybe that was allergies/sensitivities. I have a lot too, but LDN has been so.... simple.

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thats where im feeling real lucky, that i got on the LDN so early.one thing that still kills me is the LDN was available when my mother was alive and we knew nothing of it. and when i think of just how quick she went down hill.......

someone up there may like me afterall
My best friend got lung cancer, and began chemo. I kept trying to tell her to try LDN, but she was nervous. The cancer came back and she died within two weeks that time. Before she did though, she got ahold of Dr B, and was meant to be having a phone consultation on Monday. She died on Sunday.

Her husband always sends everyone that he runs into with cancer or MS to talk to me now. One of the last things she said to me is that she regretted she never gave it a try.

Of course there are no guarantees, but I wish she would have tried too.

Cherie
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