Good news!!

I had intended to start LDN ASAP in June when I was dx'ed but let some other factors get the better of me.

3 weeks ago I had an appointment with Dr. Bihari (yep, the founder of LDN therapy) which got cancelled indefinitely.

After what seems like ages of waiting I got an appointment with another phone prescriber and my script has finally been called in!!!!

I had a yucky day yesterday and today my numbness is a little worse so this is the best thing that could have happened to me today.

The physician I talked to said that in 8 years of prescribing LDN, the vast majority of patients have NO further relapses. A small number have occasional small relapses that they report as being very mild. It kills me that this drug is not more well known, researched, and promoted.

I still have my untouched box of Copaxone in my fridge, so I'll have to think long and hard about what to do about that in the coming months. For now I will sit back and see what LDN can do.

Good luck! I'm so excited for you.

I'm coming up on my 1 year anniversary with LDN (and nothing else) and couldn't be more thrilled! I started taking it on 8/25/08 and have never looked back. I agree with you......it should be more widely publicized. Just proves that a treatment doesn't have to be ridiculously expensive or have painful side effects to work well.

WooHoo PL!!!!! Keep us Posted,

I think Dr Bihari is just getting too old to take on new patients...JMO,

Took my mum to my GP yesterday who said that she didn't feel comfortable prescribing a drug (LDN) that my mum's own neurologist wouldn't prescribe. This makes sense, and maybe I shouldn't have told my GP that Dr. T wouldn't prescribe it, but I gotta be above board on all of this stuff. Then I asked my GP if my mum could get a referral to a neurologist that I understand prescribes LDN.

After this appointment, I immediately dragged my mum over to see this Dr. D yesterday, as I had an appointment myself, and my mum's referral to Dr. D was faxed-in while we were in the examining room. Good timing.

Dr. D will NOT prescribe LDN for my mum though.... Frustrating, yes, BUT she did say that she'd "advise" the GP on HOW to prescribe LDN. Dr. D also added that of the 50 patients she has put on LDN over the past few years, only ONE person has stayed on the drug. Hmmmm.... Based on what I'm reading here, I find this statistic rather confusing.

So, yeah, this circuitous route might take a bit longer, but we are making some headway. Slow headway, yes, but headway nonetheless.

Will let you know what happens if/when my mum starts the LDN.

One last thing: any advice on liquid LDN vs. pill form?

Thanks -- and take care

TL

thanks!

Yeah, Sally, I hope everything is okay with him, I was concerned when they said that he'd have to call off all appointments indefinitely. I was eager to hear from "the man" about LDN and ask him all the questions I had, but the main issue is that I 've got it on the way.

Hello

Where is "the man" located?
Maybe I should take my mum to see him, if and when he returns to his practice....

Thanks

TL

New York City.

oh dear...that's a bit far from Vancouver....

Thanks for letting me know, though.

TL

LOL, sorry, I meant Dr. Bihari, he is in New York, but he does phone consults. I don't know if he's back to work yet or not. The appts are really expensive ($450) but he is the expert, and you get as much time as you need to discuss with him, if that is important to you. There is another physician who does phone consults for cheaper. PM me if you want info.

Jappy, yeaaaaaaaaa!!!! Make sure your chemist uses a fast release filler.