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Old 08-07-2009, 03:39 PM #341
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Good luck, Jappy! I'm so excited for you. I use Skip's and they're wonderful. You'll have no problems with them.

I started out with 1.5 mg. and only took that dosage for a week before I upped it to 3.0 mg. I'm med sensitive so I've stayed at the 3.0 mg dose and it works for me. I'll have been on it a year on 8/25. It's a blessing.

Let us know how it goes.
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Old 08-08-2009, 02:23 PM #342
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my long over due update:

not sure when the last time i posted was but i know it was a while ago..
LDN seems to still be keeping my MS in check for now..
this is the longest i have gone without having a flare or needing IVSM.
now and then some of my old Sx will kick up for a few min or a day but as far as i can tell no new Sx..

i have been a little bummed out this summer.. not depressed but i don't think that has to do with the LDN.. i think it has to do with the fact we have had nothing but rain and colder weather this summer and very little sun.. which always bums me out..
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Old 08-08-2009, 02:53 PM #343
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Good to hear from you, PunkDizzle! I've wondered how you were doing. Hey, if you want sun and hot weather....just come to GA. We've got plenty of it!

Glad to hear you've been stable with your MS. LDN has been good for me, too.
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Old 08-12-2009, 12:54 PM #344
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FINALLY all is a go ahead.

Found a pharmacy 15 minutes from my house that will do the rx

The dr. faxed the rx and they are in the process of compounding it
to the order.

I will pick it up tomorrow.

Jappy
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Old 08-12-2009, 01:02 PM #345
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Quote:
Originally Posted by Jappy View Post
FINALLY all is a go ahead.

Found a pharmacy 15 minutes from my house that will do the rx

The dr. faxed the rx and they are in the process of compounding it
to the order.

I will pick it up tomorrow.

Jappy

I'm so excited for you!!! Don't forget to give us updates every now and then to let us know how you're doing on LDN!
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Old 08-12-2009, 06:59 PM #346
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Quote:
Originally Posted by Jappy View Post
FINALLY all is a go ahead.

Found a pharmacy 15 minutes from my house that will do the rx

The dr. faxed the rx and they are in the process of compounding it
to the order.

I will pick it up tomorrow.

Jappy
Great! Good for you for insisting on it, I don't think I'd have the guts to do that with a doc who had already said no. I just chickened out from pushing my neuro and found a different doc for my LDN rx.

I just got mine today so we'll see how the first day goes. The doctor ordered a large amount of 1.5 mg pills so I can start with that then go up to 3 then 4.5 over 9 weeks.
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Old 08-12-2009, 07:01 PM #347
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Originally Posted by tfrederick View Post
Hello

Where is "the man" located?
Maybe I should take my mum to see him, if and when he returns to his practice....

Thanks

TL
LOL, sorry, I meant Dr. Bihari, he is in New York, but he does phone consults. I don't know if he's back to work yet or not. The appts are really expensive ($450) but he is the expert, and you get as much time as you need to discuss with him, if that is important to you. There is another physician who does phone consults for cheaper. PM me if you want info.
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Old 08-12-2009, 07:12 PM #348
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Jappy, yeaaaaaaaaa!!!! Make sure your chemist uses a fast release filler.

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Old 08-13-2009, 12:43 AM #349
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Quote:
Originally Posted by SallyC View Post
Jappy, yeaaaaaaaaa!!!! Make sure your chemist uses a fast release filler.

A fast release filler? Whuh? I get mine from Skip's -- is that what he uses?
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Old 08-13-2009, 10:09 AM #350
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Originally Posted by Twinkletoes View Post
A fast release filler? Whuh? I get mine from Skip's -- is that what he uses?

Yeppers!!!
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