I don't know if it was wise, Lady, but I went through my gallbladder surgery while on LDN.

I did retain a ton of fluids after the surgery, but I don't know if that had to do with the pain meds I was using after, the surgery itself, or something to do with LDN and codeine (anesthetic). The anesthesiologist didn't think there was a problem continuing with the LDN though, and we had a LONG meeting before the procedure.

I wouldn't even have considered dropping the LDN for colonoscopy, but I think that procedure is done differently in Canada then the US, or at least the way it was done here when I had it. They didn't give me anything for the first while, then drugged me with just a sedative of some sort (Valium/Ativan?) to finish the job. That was many yrs ago ... but they still don't knock us out here, I don't think.

Cherie

An update:

I have been doing really well. Then I was not so well. Then it got worse. After that it got much better. It stayed that way for a while. Then there was a downward trend. After which I felt better.

In other words, I still have MS, but LDN still helps quite a bit.

Cherie, I just went out today for the first time in 14 days. Did a lot of resting, and well.. my body must have needed it. We had 24 inches of snow last week, eek, so I was going not going out. I also did the IVSM one week too.

Anyway, the only reason I went out is because my DH had his Colonoscopy today and they would not release him unless he had a adult driver to take him home.

He drove there and I drove home, a bit weak still.. but I had no choice. He was put completely out. Put on the gown, insert the IV and wake up in recovery one hour later.

I sat three hours in the waiting room. He was acting all happy and silly, talking and laughing none stop, so I would never let him behind the wheel. He acted drunk. Drug drunk.

So we both has it done before (every 5 years), so we know we go out like a light here. Best part is you do not remember anything of the procedure.

A Sigmoidoscopy they just numb the outside and you are awake for that one here.

So I know I will be getting anesthesia in the IV and want to make sure I am not awake during this event. My colon is very sore inside all the time, belly too. It's the other autoimmune disease I have. It even hurts to press on the outside like the GI doctor does.

So all this to say yes.. I need to come off LDN, one to two days before. No biggy. That night I will start up again.

Marion, you have been on the MS roller coaster lately. Sorry to hear that. I hope you stay well for now, okay? The holiday time is always the pits for many of us. We get stressed or overdo things. LDN is great, but not a miracle. We still get stuff. (sigh)

Sally, I love your new avatar picture, you look terrific for a mature dame.

Back on LDN tonight.

Only missed one day of it. I couldn't stop it before, I didn't want to. I had my Colonoscopy and was put out for one hour, I slept in recovery for two more hours. GI doc took 3 biopsies, but said it looked good. That day before prep stuff, is real nasty

I feel so much better when I am on LDN. My left leg was swinging very wide today. Not much control over it. I asked the nurses to walk me to the dressing room and ladies room. I am glad it's done and over with.

Now if the weather would be so kind as to warm up, I would be a really happy camper.

I have been on LDN for almost a year now - I don't notice any improvement and in fact both my balance and walking have deteriorated quite a bit during this time - I'm staying on LDN because I don't know if my deterioration would be worse without it and I'm still hopeful I may improve -

I know what you mean, KarenMarie. Sometimes I wonder how effective my efforts are in trying to stave off the progression of this disease. What it all comes down to is - you make your best choices, and you take your chances. I have been feeling pretty lousy lately. In this frame of mind it is easy to start to second guess myself. But I know that this time of year is always rough on me, and there are better days ahead. How about I make you a deal? I’ll keep a stiff upper lip if you will. Whaddya think?

Welcome back Karen, nice to hear from you.

I'm so sorry that LDN doesn't seem to be doing the job for you. I don't blame you for questioning it's efficacy for you.

Are you feeling any benefit at all? For instance, I don't notice walking any better, but I do notice better urinary and bowel control. I have also noticed that my fatigue level is just normal and not horrible, as it was, prior to LDN. I also notice an overall feeling of well being (most days).

I've been on it since April 12, 2003 and I know it's still helping me, but it is not a cure...Once I came to terms with that, I'm ok with it.

I will pray that LDN keeps the MS Attack Rats and Progression Rats away from your door.....any extra benefits would also be nice.

How's everyone doing? It's been quiet on this thread for a while.....hope that means everyone is doing well.

I switched the time I take my LDN from bedtime to midday. After speaking with my doctor we both determined that it was playing a major role in keeping me awake at night. The couple of times I had forgotten to take it before bed I noticed that I slept much better.

So, now I take it sometime between noon and 3 PM. I'm sleeping much better at night now. He said that I'd get the same benefits I'd been used to with it but I'd just sleep better. He said that some folks are like this and find taking it earlier in the day better for them. I always knew I was weird!!

Hey, Kelly, we're all different. I believe in the, whatever works for you, therapy..

LDN is still my fav. med.....Prozac being my 2nd fav. Now, if I could just find that fountain of youth.

Has anyone ever done an "every other day" course of LDN? I've forgotten to take mine probably three or four times over the course of the last two years. I haven't noticed any big difference, but don't want to rock the boat. The only benefit I see is that my LDN would last longer. But it's so inexpensive that it's not worth the possible flare up that might occur by not taking it regularly. Just wondering if anyone has experimented with it.