my MS doc said she was ok with LDN, but I think I asked about it before I started the tysabri... but yeah I'll check back in... any other thoughts out there? and/or people doing the combination?

thanks!

Hi Roadaction,
Welcome to Neuro Talk. I have heard of people taking both Ty and LDN. Even Copaxone is okay. Just the Interferons iare a no-go.

It also depends how long you are on Ty. If you just started, it is better to see if Ty is helping you..then add LDN so you know which is working or not.

I am not a doctor so ask your Ty doctor at infusion time. Some Neuro's may not know for sure. The Touch program may have protocols you have to follow. When is doubt ask. Good luck to you.

My neuro gave me LDN while on Ty but I only took it a few nights because of sleeplessness from LDN & dry mouth bothered me.

Hi,

I'm new to this forum and also just started taking LDN about a month ago. I'm taking 1.5mg and will go up to 3mg tonight or tomorrow night.

I'm wondering if LDN has helped anyone with brain fog and energy. These issues are really hard for me. Along with balance and coordination. The LDN seemed to help initally but am not so sure now. I'm hoping increasing the dose will help. Have other people found that increasaing the dose helps to reduce symptoms more consistently?

I have a brain injury (atrophy to part of brain) from severe infection decades ago. I do not have MS but since there are some symptoms in common and LDN, I thought I'd post here. I'm glad to have the opportunity to connect with others who have neuro challenges!

Thanks!
-Hazzell

Hi Hazzel, welcome to NeuroTalk and to LDN.
I started on 3mg in April of 2003 and went up to 4.5 a couple of yrs? later. I didn't notice any difference, but I was already on an optimal dose.

You are on a pretty low dose, lower than is recommended, so you may notice LDN working better at 3mg.

Good luck and please stick around to enjoy our forum and to keep us posted..

Hi Hazzell,
Welcome! That is a hard question. I know it works for MS people, in many ways, but you don't have MS but a brain injury from the past.

I don't think any of us knows if it will help you. It might with energy, some pain relief, elevate your mood with higher Endorphins in the body. I am thinking it can't really hurt you in such small doses we take, so it probably won't hurt you to try it. Never use the slow release form.

Have you read the LDN website? It may have more info there. Nice to meet you and good luck to you.

http://www.lowdosenaltrexone.org/index.htm

.

Hi Sally and Lady,

Thanks for your warm welcome!

I find the LDN seems to help me a little with energy, intitally it helped with pain too. But not enough energy support. I just upped the dose to 3mg last night and hopefully it will help more.

Thanks for the link Lady! I've been to the site and also read a book about it. It is the most hopeful stuff I've read about a med in a long, long time.

Do you find that you wake up at night from it? At some point in the night I wake up with a surge of energy in my body but my mind is really hazy. I fall back to sleep fortunatly. I try not to take it until right before I go to bed, hoping that the endorphin surge will occur closer to morning so I can benefit from it while awake.

-Hazzell