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Old 01-16-2009, 08:43 AM #11
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Seara - That is great that you finally have some answers and a treatment plan. However, there is no need to go running off on us like that. LOL The others are right, there are lots of people on NT with fibro and as Kelly stated there is a fibro forum. Additionally, there are a few on here that have both MS and fibro so no need to be taking off. Please stick around.

I hope the treatment plan works well for you and you start feeling better soon.
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Old 01-16-2009, 08:44 AM #12
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Seara I'm sorry about the fibro, but I'm glad you're not leaving the forums.
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Old 01-16-2009, 08:48 AM #13
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Seara congrats on not having ms here is the fibro forum link you do not have to be a stranger, although we do like the strange ones here: again congrats hopefully the docs can ease the fibro pains

http://neurotalk.psychcentral.com/forum12.html
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Old 01-16-2009, 08:59 AM #14
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searra

just wanted to say i am happy yo got a diagnosis. There are many drugs and drug combos used to treat fibro. so if this dosent work let your dr know.

Good luck hope you feel better soon.

be well
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Old 01-16-2009, 02:50 PM #15
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Hugs to you Seara...~! Does it feel good that you have a DX?? It seems your PCP is on your side.. an advocate for you.

WE like to have a NAME to the monster that hurts us.. disrupts our daily lives and hopes for the future.

Now again.. this is MY opinion and experience but I relate to you and many in so many ways.
BUT many many of us have to detox. POISONS build up in our bodies. Toxins in our foods.. like mercury..hidden in GOOD foods. Even eggs...chickens..meats.. fruits and veggies have poisons on them called toxins. I am a perfect example.

When I went to this amazing nutritionist (not your standard one who analyzes your diet and illness and such). ONce he found out what was built up in my liver.. intestines and such...causing INFLAMMATION in the brain and DETOXED me from those toxins many of my neuro symptoms improved or disappeared.

To this day I still have my balance improved by eliminating the toxins on the brain..and liver..which caused inflammation.

Its NOT a CURE.. BUT IT HELPS...A LOT!!

Ok.. I was told I have fibromyalgia..had all the HOT spots..until I went to the next doc.. a rheumatologist.. ..2 of them.. who ruled it out.. go figure.

Just stay here with us.. explore other forums..but come back and let us know HOW the heck you are ok?

Warmly, Jan
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Old 01-16-2009, 04:46 PM #16
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i'm glad it's not MS seara.
i hope the new meds help. i have fibro too and have been dealing with muscle pain for a long time.

stick around while you weather this new storm.
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Old 01-20-2009, 12:35 AM #17
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Hi Seara! I'm so glad you don't have to deal with MS as well as fibro. Having both is really tough to live with. Like Cheryl mentioned, the only seasons that are half-way decent are spring and fall, except for the rain. Summer's heat is bad for the MS and the cold of winter is terrible for the fibro. Usually there are only a handful of days that are REALLY GOOD!

Hope your meds work for you. I'm still trying to find the magic combination after living in severe pain for the past 12 years.

Gentle hugs.......
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Old 01-20-2009, 11:22 PM #18
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Thanks everyone!

Well, I started one day on the meds and my gosh I was so out of it for 2.5 days from one dose I couldn't believe it. I stopped taking them because I had a babyshower for my daughter that I had to cook for and shop for and set up for etc etc etc. Then, the day after her shower, her water broke (Sunday) 6 weeks early!!!

We had a healthy baby boy by c-section this morning and I'm exhausted and ready for bed. I've had to put myself on the back burner once again...but for this I can handle it

As soon as mom and baby are back home and settled in, I will start the meds again and take them for a week. I'll see if the side affects go away (I HOPE!!) and life will be dandy once more....yeah right LOLOLOL

Off to dreamland now....take good care everyone!

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Old 01-21-2009, 08:23 AM #19
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You said cymbalta and flexeril? I can't say about cymbalta, as I've never tried it, except that you may need to start at a low dose and work your way up if a lower dose is available.

See if it's the flexeril first though. Ask around here, and I think you'll find it knocks a lot of people for a loop. I don't knock out easy at all, but that stuff even makes me sleepy.

My doc switched me to methocarbamol instead, which works well and doesn't make me drowsy.

BTW, congrats on the new baby!
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Old 01-21-2009, 12:20 PM #20
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Thanks so much (((braingonebad))) I can't wait to get back to the hospital to hold my little chunkymonkey today LOL.

As soon as daughter and grandson get home I will start the cymbalta again without the flexeril. I've had flexeril before and don't remember having that kind of reaction to it. It could have been the combo of the two or just the cymbalta...don't know yet for sure, but I'll figure it out

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