That's good news Sarah!

Glad to hear you've found a neuro. that will actually talk with you and then run a gambit of tests.

I hope answers to the questions come and a diagnosis will be presented.

Again, congrats on finding a doctor that will listen!

Niko

hallelujah, Sarah!

hope you finally get some answers.

Sarah

I am really happy you found a Dr that listens. I have been lucky and have not had drs doubt me in any way and cant imagine that.

Good luck
laurie f

I'm proud of you for even having the guts to keep seeing doctors after all they've put you through!

I hope this one pans out, really I do.

Sarah, so glad to hear you have a neuro you can talk to and most importantly one who listens.

I know I have been so lucky that both my PCP and neuro are listeners and take all the time I need when I'm there.

BTW, any trips downstate planned soon?

Glad to hear that you FINALLY found a doc who listens and understands!

That's half the battle! Now to figure out what is going ON!

Oh thanks all

Yes excited, so far I did go have the first testing he talked about, all the evoked potentials. I had the eye one before, but not the limbs or ear ones. He was surprised no one had the ones on my limbs done.


Anyhow, that was wierd feeling on the limbs, but wasnt too bad. My right foot though, they were turning up the volume of current and watching for the toe to twitch (guess the toe or when arm done the fingers have to have a twitch before they record the nerves reaction up the body) anyhow, the lady holding the pad givign current said to the other no toe twitch yet...turn it up more...and the other was like ummm we are maxed out to the top..

then the took off and started again, finally getting a toe twitch enough. hmmm wonder if the leg will test out wierd too. but you know me my tests are always normal lol

so here out not getting too overexcited, about results showing things, or about finding out a dx, just trying to wait and let things happen how they do.

but the neuro is a keeper I am sure yeahhhhhhhhh

SASSY, I was suppose to come down this weekend, there was that Gymnastics tournament that was in my sisters name the MS invitational...(yes sisters initials were MS) It was going on today...

I was going alone with two kids at first, then maybe my mom was going to join me. In the week visiting my dad up at hospital, the drive too and from..my right leg started if drive for 20min or more, would go not only numb but sciatica pains..or just troubling. Hard to even hold down the gas pedal at times. SOOOOOOOO< I had to cancel driving the 8 hours due to this and that stinks!! (asked my bro in law to buy us some of the tshirts and I can send money)

hugss all, thanks too, sarah

Good luck Sarah. I am glad you found a neuro who is paying attention!

thanks flygirl, how you been dear?? hugssss,sarah

Thanks for PM.. but glad others are supportive you here.

Dont mind my stupidity...but what again is Evoked potentials? What is it supposed to measure? I only had EMG of my arms.. nothing of my bothersome legs.

ANd.. I wanted to add..that the more specialists that I see the more they know what to test for. Keep that in mind. Rheumies also know what kind of autoimmune tests to run..

did you ever see one?

Glad you like your Neuro.. is he an MS doc?

Warmly, Jan