Jan,
I'm happy to hear you've gotten some answers. You definitely deserve them, as does everyone,and you were so patient. I know it's not easy and I gotta commend you for hanging in there and being your own best advocate. I really hope they can treat you and help you to feel better. Don't forget, we're here for you too!

I most clearly have MS, AND secondary sjoghrens. I also have a glioma in my right front lobe. So, since I have been having migraines for years...I guess its all of the above.

The glioma hasnt grown, moved, or changed in 2 years that we have been watching it. I have traced back MRIs to 2002, and it was there! NOT ONE of those bullies that told me I was over reacting noticed the darn thing! just skipped on by it.

My worst sjoghrens is dry eyes. I have punctal plugs in the lower lids and OH what a change! not completely better, but I no longer feel like my eye lid is made of sand paper, and scratching my eyeball out of my head when I blink. Since starting copaxone I have stopped collecting lesions, and the ones I do have are smaller, and appear to be healing.

My attitude is the biggest change. I have stopped living my life as if death is around every corner. Horrible debilitating illness and crippling disease. Today, I climb out of bed, and get going. I am doing my best to ignore my nagging lil snotty daemon voice that says "you dont feel good, get back in bed." I am walking again, sewing again, and doing more things to fill MY cup, instead of focusing so hard on others. then I have to recenter that daemon in the afternoon when its time to take a break, and relax. stop pushing myself to the point of exhaustion. its OK to take a break! so, this learning journey has me learning about ME, and what I need to be a good person to myself.

I hope you get the answers you seek.