FAQ/Help |
Calendar |
Search |
Today's Posts |
|
![]() |
#1 | |||
|
||||
Senior Member
|
I'm sorry, Barb
![]() ![]() ![]()
__________________
Multiple Sclerosis-Dx May 2007 . |
|||
![]() |
![]() |
![]() |
#2 | |||
|
||||
Wisest Elder Ever
|
Aw, Barb, I'm sorry. I couldn't take Copaxone, either.
Have you considered LDN? My Neuro would not even discuss it with me so I went elsewhere and got it on my own. As much as they like to think they know everything.....we know our own bodies best. I finally told him that I was the one with MS, not him, and I would decide what I would and would not take. I felt like a guinea pig trying out all the concoctions he wanted me to take...and kept feeling like crap while taking them. Stand your ground......he's not the one having to experience the reactions....and he works for you.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
|||
![]() |
![]() |
"Thanks for this!" says: |
![]() |
#3 | |||
|
||||
Magnate
|
Barb, that sucks!
I never had any IPIR's while using Copaxone, it just didn't work for me. Your reactions sound extreme. I'd be talking to my neuro quicklike! Let us know how it goes!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
|||
![]() |
![]() |
![]() |
#4 | |||
|
||||
In Remembrance
|
Darn it, Barb. Im sorry the C isn't working for you...I'd say you gave it the old college try.
![]() ![]()
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
|||
![]() |
![]() |
![]() |
#5 | |||
|
||||
Fabulous Belizean Member
|
hey Barb... I stand in solidarity with you.
I understand how you feel about de CRABs. ![]() coming up on 21 years of MS (next month), and at this point, I am on no meds... as I couldn't tolerate them either.
__________________
And the trouble is... if you don't risk anything, you risk even more. - Erica Jong |
|||
![]() |
![]() |
![]() |
#6 | ||
|
|||
Senior Member
|
![]() S.S. nor my neurologist could never explain why the flu like symptoms. I kept asking if it could possibly be caused by the meds if they had been frozen. Mine were shipped with the ice packs directly against one side of the box and I always wondered if those syringes on that side were frozen.
__________________
Worrying is like a rocking chair it gives you something to do, but it doesn't get you anywhere ~Van Wilder |
||
![]() |
![]() |
![]() |
#7 | |||
|
||||
Elder
|
Aw Barb,
![]() ![]() ![]() ![]()
__________________
Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
|||
![]() |
![]() |
Reply |
|
|
![]() |
||||
Thread | Forum | |||
Scary night last night | The Stumble Inn | |||
P-doc this afternoon and........ | Bipolar Disorder | |||
Tue afternoon | Weight Loss & Healthy Living | |||
Disturbing/anxious night last night | Bipolar Disorder |