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01-29-2009, 11:46 AM
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Wisest Elder Ever
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Aw, Barb, I'm sorry. I couldn't take Copaxone, either.
Have you considered LDN? My Neuro would not even discuss it with me so I went elsewhere and got it on my own. As much as they like to think they know everything.....we know our own bodies best. I finally told him that I was the one with MS, not him, and I would decide what I would and would not take. I felt like a guinea pig trying out all the concoctions he wanted me to take...and kept feeling like crap while taking them. Stand your ground......he's not the one having to experience the reactions....and he works for you.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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01-29-2009, 11:56 AM
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Magnate
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Barb, that sucks!
I never had any IPIR's while using Copaxone, it just didn't work for me. Your reactions sound extreme. I'd be talking to my neuro quicklike! Let us know how it goes!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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01-29-2009, 12:04 PM
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#3 | |||
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In Remembrance
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Darn it, Barb. Im sorry the C isn't working for you...I'd say you gave it the old college try.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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