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#1 | ||
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Junior Member
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Last round of steroids I experienced heartburn, migranes and lots of other pretty hard side effects but i found it worth it all in the end.
I was put on prednisone last time and this time Medrol and more mgs but neuro assures me I'm taking less then the first time. This is awful but I don't trust my neuro - and I have two. My defense is that it's my body and I know what was working and what is now happening and god forgive me but sometimes I'm wondering if they want to keep me on steroids for whatever reason. i know it doesn't make sense but what does is that this disease is frightening and unpredicatable so 6 days a week my focus is on it. I have too many symptoms Also after the preds. i think my hair got thinner. I don't know what to think. Oh and now I'm informed that I cannot go into the hospital for IV - they have someone come to the house put the line in and leave the medication - no if ands or buts about it. I mean if I don't have enough to deal with |
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#2 | |||
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Member
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My first round of steroids was like a miracle. Really lightened the symptoms and gave me some energy but the more I took them, the worse I felt. I ended up being on monthly pulse dosing for two years plus three rounds of 5 days additionally during that time.
As Sally said, I don't think it worsens the MS but it can ultimately weaken you and affect cardiac status and metabolism and weight gain and can reach a point in some people where it has worse side effects than those of the illness for which it is being given. Sorry you're feeling badly. Glad you've found us. |
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#3 | |||
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In Remembrance
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PetPuppy, have you and your neuro considered Tysabri? It sound like it would be an option for you?
I know what you mean about not trusting your Neuro. Sometimes I think they are way too Steroid happy. It's your body and your decision. If the steroids aren't helping you, they have a great potential to hurt you. Investigate for yourself and make a decision that is right for you. I hope you feel better soon. ((((Petpuppy)))))
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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