Char,
Even though he confirmed it over the phone, he sounds like a very caring, compassionate person.
Would you please ask him to move to my area so that I can have him as my neuro? Please?
I hope now that you have confirmation, you feel empowered knowing what is going on with your body, and can take proactive measures.
Sounds like you have a champ in your corner with you...
take care

(((((Yabbitt)))))))

Don't you ever lose that neuro you hear me?

Send that Neuro down my way, too Char~ Mine is a ''stinker".

I'm glad he has finally fessed up, and has given you the confirmation you deserve. I know it's not nice (even shocking) to hear at first, but at least you know for sure what MonSter you are reckoning with . . .

So I guess this means a discussion is in order to get you on a DMD to help manage your number of attacks better? You've had SO many steroid treatments, which probably isn't the best plan of attack. Steroids can be good after the fact, but it would be nice to avoid as many attacks as possible by using a more preventative therapy.

I know you've been dealing with all of this for a long time, YB, but getting confirmation always brings a flurry of emotions to the surface. Hope you get in to see him soon to go over your options and move onto a new phase.

Cherie

Yabbit I'm so pleased you found a nice neuro. Don't we all wish we could have one like that???!!

You've been through so much over the time since I 'met' you, that I'm sure a diagnosis of any kind must be a relief off your mind. I know it was for me.

My neuro wrote a letter to my GP saying how surprisingly composd I was when given the MS Dx. Had he known what had been going through my head, he'd not thought it surprising at all. I truly thought I had a brain tumour!

I'm glad the subject has been opened up for you. It should be easier now that you can talk about it.

...............

Cherie, are you a doctor?

((((yeahbut))))

I get it. When I had my T spine MRI, I knew something was up. But after a couple years of tests with no answer, I was still pretty sure they would find nothing and give me the *all in my head* dx again.

When I called the neuro for results, they told me I had a syrinx. I didn't know how to spell it - never heard of such a thing before. So I rushed off to get a copy of my MRI films and report.

Seeing the thing, reading the report, I felt gut-punched. I had just been told there was the stuff with my C spine, but this was a whole 'nother game. I don't scare too easy, but this scared me. That was the scariest picture I've ever seen.


The shock of it stinks, but I'm glad you finally know. Sounds like you're in good hands, and you know we're all here for you.

No, I am medically retired.

I don't even do the DMD's myself, and never have . . . but I think MOST people believe that trying them is our best course of action.

From your previous postings, you have been on steroids several times this past year or two, which means you are having lots of relapses and are theoretically at more risk for accumulating "permanent" damage during each one. Since the primary goal of the DMD's is to hopefully reduce the number of relapses, most people consider their options ASAP in that regard.

I don't (personally) buy into that, but I care enough about others to suggest that they might want to discuss this with their doctors to make their own personal decisions.

What has that got to do with whether I am a doctor though?

Cherie

Char, still praying for you and hoping things work out.

Cherie, she asked you that because you are posting replies as if you are a doctor. I personally stray away from giving medical advice even though I have 20+ years of experience and knowledge of ms and have worked 13+ years in the field. I don't ever want to be responsible for someone taking medical advice from me, a "laymanish" person even if I had good intentions. Besides, I don't have the piece of paper to do so.