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02-03-2009, 05:55 PM
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Magnate
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As many of you know I have not had an official DX, only Probable MS. Well, I went to my infusion this afternoon and there on a piece of paper was my name, address and DX MS.
I have to say I took a double take and had a weird feeling in my gut. I don't know how to explain it, how to explain the feeling of seeing those words written on paper with my name attached to it. The neuro has told me this is what he fels I have, my PA agrees this is what I have, even when I went to a seminar with RW and got to sit and talk with her Neuro he agreed with everything we told him that is pretty much what I have but seeing it written so much different. I don't know if it was the shock of seeing it the first time or what. I can't seem to get that picture out of my head of that piece of paper with my name on it.
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Tough Times Don't Last ~ Tough People Do Courage is doing what you're afraid to do. There can be NO courage unless you're scared.
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02-03-2009, 06:03 PM
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Senior Member
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Consider it a blessing because it could have said something worse.
 I am so glad that eons ago, MS was my diagnosis and not the alternative,..., a brain tumor.  -Vic |
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| "Thanks for this!" says: | AZjanie (02-03-2009), CayoKay (02-04-2009), Debbie D (02-03-2009), DM (02-05-2009), dmplaura (02-05-2009), ewizabeth (02-03-2009), GmaSue (02-08-2009), Jappy (02-04-2009), Kitty (02-03-2009), Koala77 (02-05-2009), Natalie8 (02-05-2009), Riverwild (02-03-2009), SallyC (02-03-2009), SandyC (02-03-2009), tkrik (02-05-2009), Twinkletoes (02-04-2009), weegot5kiz (02-03-2009), yeahbut (02-03-2009) |
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02-03-2009, 06:06 PM
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#3 | |||
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Magnate
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Quote:
__________________
Tough Times Don't Last ~ Tough People Do Courage is doing what you're afraid to do. There can be NO courage unless you're scared.
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02-03-2009, 06:14 PM
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Grand Magnate
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That is what they "think" it is, and that is the reason it was written on the paper.
You realize it is still "probable" until you hear it from their mouths, right? Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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| "Thanks for this!" says: | GmaSue (02-08-2009) |
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02-03-2009, 06:38 PM
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Magnate
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hey you, hugssssss
in writing does make if more real!! hugssss,sarah
__________________
. KEEP SMILING, LIFE IS TOO SHORT TO WEAR A FROWN!! . |
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02-03-2009, 06:46 PM
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#6 | |||
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Magnate
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Quote:
Maybe I shouldn't of said anything?
__________________
Tough Times Don't Last ~ Tough People Do Courage is doing what you're afraid to do. There can be NO courage unless you're scared.
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02-03-2009, 07:01 PM
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#7 | |||
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Magnate
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Yeahbut you were sharing how you felt, that is a good thing. I would think if your neuro says he thinks it is MS that is saying he thinks it is MS...
so probable, possible, yes it is, probable, I think it is MS, well you know what you have something, and real likely MS, and seeing it in writing can feel hard on someone....so MORE GREAT BIG HUGSSSSSSSSSS!!
__________________
. KEEP SMILING, LIFE IS TOO SHORT TO WEAR A FROWN!! . |
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02-03-2009, 07:18 PM
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Magnate
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You're STILL our leetle Yabbit, with or without a diagnosis, yanno!
HUGS!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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| "Thanks for this!" says: | CayoKay (02-04-2009), GmaSue (02-08-2009), Jappy (02-04-2009), KarenMarie (02-05-2009), Koala77 (02-05-2009), SallyC (02-03-2009), SandyC (02-03-2009), tovaxin_lab_rat (02-04-2009), yeahbut (02-03-2009) |
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02-03-2009, 07:38 PM
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#9 | |||
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Wise Elder
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Char, we get it. Of course you would feel different seeing it in writing for the first time. I would ask him about it.
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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02-03-2009, 08:01 PM
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#10 | |||
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In Remembrance
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(((((Char)))))) Just why is it that you don't have a deffinate DX....Sheesh..
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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