As many of you know I have not had an official DX, only Probable MS. Well, I went to my infusion this afternoon and there on a piece of paper was my name, address and DX MS.

I have to say I took a double take and had a weird feeling in my gut. I don't know how to explain it, how to explain the feeling of seeing those words written on paper with my name attached to it.

The neuro has told me this is what he fels I have, my PA agrees this is what I have, even when I went to a seminar with RW and got to sit and talk with her Neuro he agreed with everything we told him that is pretty much what I have but seeing it written so much different.

I don't know if it was the shock of seeing it the first time or what. I can't seem to get that picture out of my head of that piece of paper with my name on it.

Consider it a blessing because it could have said something worse.

I am so glad that eons ago, MS was my diagnosis and not the alternative,..., a brain tumor.

-Vic

Thank Vic, you are right but I have two of those, thankfully not cancer! But, I have them watched every 6 months just to make sure!

That is what they "think" it is, and that is the reason it was written on the paper.

You realize it is still "probable" until you hear it from their mouths, right?

Cherie

hey you, hugssssss

in writing does make if more real!! hugssss,sarah

YES, of course I still know it is probable and I am happy with that Cherie, I only was saying how it was hard reading it.

Maybe I shouldn't of said anything?

Yeahbut you were sharing how you felt, that is a good thing. I would think if your neuro says he thinks it is MS that is saying he thinks it is MS...

so probable, possible, yes it is, probable, I think it is MS, well you know what you have something, and real likely MS, and seeing it in writing can feel hard on someone....so MORE GREAT BIG HUGSSSSSSSSSS!!

Vic - You are so right. My alternative was a nerve tumor in my spine.


Char - I could be wrong here but I think that since you haven't been told it is definite MS that seeing the words DX MS was a little bit of a shock to you. I think I would have felt slighted if I were in your shoes. Kind of like why did my dr put that on the order but didn't tell me I had it.

We all love regardless! Hang in there and I do hope you start feeling better soon.