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Old 02-06-2009, 07:10 AM #1
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Thank You, Everyone! I had to call the Neuro yesterday for during my Infusions I was having a low blood pressure. The nurses were not happy with with it so they called. The neuro called me back later in the day to check on me.

I asked him about the dx written on the paper. He said to me, "Charlotte, I am sorry that upset you and I am sure it was hard to see. You were there for the Infusion for a dx of MS, yes I feel you have MS 100%. I also have Laura (the nurse) working on finding a medication I can give you to slow this down for free since you have no insurance. This is the fifth time in less than a year you have been on some type of Steroid's - each time it fixes the problem, that is a sign of MS along with every one of your sx, I am sorry to say but you have MS. It is time to slow this down if we can and I can't wait any longer and either can you."

He then went on to appologize that he did this over the phone, he felt really bad but I told him it was ok, I am the one who asked. Plus, I need to know so I can personally deal with it. He is a wonderful Neuro - I respect him and trust him.

Thank you for your support!

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Old 02-06-2009, 08:33 AM #2
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(((Char))) Please know that we are all here to help you through this initial shock of definitely being dx. The 1st year can be kind of rough but many of us have been there and are more than willing to help you through this. 's for you.
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Old 02-06-2009, 08:34 AM #3
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Quote:
Originally Posted by yeahbut View Post
I asked him about the dx written on the paper. He said to me, "Charlotte, I am sorry that upset you and I am sure it was hard to see. You were there for the Infusion for a dx of MS, yes I feel you have MS 100%. I also have Laura (the nurse) working on finding a medication I can give you to slow this down for free since you have no insurance. This is the fifth time in less than a year you have been on some type of Steroid's - each time it fixes the problem, that is a sign of MS along with every one of your sx, I am sorry to say but you have MS. It is time to slow this down if we can and I can't wait any longer and either can you."

What a kind doctor! Trying to find a way to help you since he knows you have no insurance. I wish there were more doctors out there with that bedside manner. When I told mine I had no insurance he just sort of shrugged like "oh well, your problem not mine".
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Old 02-06-2009, 09:51 AM #4
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Char,

That neuro is a keeper, God bless him. I hope the nurse can get you fixed up with some MS meds to slow it down.
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Old 02-06-2009, 11:31 AM #5
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Char,
Even though he confirmed it over the phone, he sounds like a very caring, compassionate person.
Would you please ask him to move to my area so that I can have him as my neuro? Please?
I hope now that you have confirmation, you feel empowered knowing what is going on with your body, and can take proactive measures.
Sounds like you have a champ in your corner with you...
take care
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Old 02-06-2009, 11:37 AM #6
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(((((Yabbitt)))))))
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Old 02-06-2009, 01:19 PM #7
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Don't you ever lose that neuro you hear me?
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Old 02-07-2009, 09:04 PM #8
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Send that Neuro down my way, too Char~ Mine is a ''stinker".
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Old 02-07-2009, 10:41 PM #9
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I'm glad he has finally fessed up, and has given you the confirmation you deserve. I know it's not nice (even shocking) to hear at first, but at least you know for sure what MonSter you are reckoning with . . .

So I guess this means a discussion is in order to get you on a DMD to help manage your number of attacks better? You've had SO many steroid treatments, which probably isn't the best plan of attack. Steroids can be good after the fact, but it would be nice to avoid as many attacks as possible by using a more preventative therapy.

I know you've been dealing with all of this for a long time, YB, but getting confirmation always brings a flurry of emotions to the surface. Hope you get in to see him soon to go over your options and move onto a new phase.

Cherie
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