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Old 02-07-2009, 09:38 PM #1
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Faith, Sarah, Barb..Thanks for commiserating .. I've been on Rebif and Copaxone, neither of which worked for various reasons..I've been told this is PPMS, but this isn't supposed to happen with that, so I don't know what to call it anymore. Well, I do, but nice girls don't talk like that .. The steroids seem to be helping. I went to get the mail without the cane today and made it there and back, so things are looking up. 'Roids give me wicked bad headaches, though, so I'll be glad when the taper starts (on Tuesday)..
Hope all is well with everyone!
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Old 02-07-2009, 09:51 PM #2
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I'm so sorry to read about this flare, and I do hope the 'roids give you some relief.

You mentioned brain lesions and an unco-operative leg. Did your neuro do a spinal MRI as well to check for spinal lesions, in view of your leg problems? I've only had one spinal MRI, but it shows the lesions that have caused the troubles with my legs, even the original exacerbation over 30 years ago.

I'll keep you in my prayers in the hope that this eases quickly for you. Please keep us up to date as to how you're managing.
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Old 02-07-2009, 09:55 PM #3
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You DROVE lifting your right leg UP..and moving it to brake????

AMAZING.. you are SUPERFLY~!

Hang in there...Warmly Jan
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Old 02-07-2009, 10:01 PM #4
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I had spinal lesions several years ago, but nothing new now, Anne.. Just more holes in my head apparantly ..
Jan, I've had to drive with my left leg before, but there just wasn't enough room in the car to make it work this time (too many passengers)..Superfly? LOL..What a picture that conjures up..Don't think I could lift all the gold chains..
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Old 02-07-2009, 10:45 PM #5
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Maybe PRMS . . .? How long have you been dx?

Why did I think you were on LDN...

So sorry for the newest results.

Cherie
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Old 02-07-2009, 10:49 PM #6
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So sorry Polar, I hope the roids work and you are feeling better soon..
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Old 02-07-2009, 11:14 PM #7
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I've been dx'd for 4 years, and yes, Cherie, I'm on LDN..I've had good luck with it, but it seems to be not quite as effective as it once was..Maybe that's just temporary, too. PRMS has crossed my mind, but what a grand cosmic joke this is turning out to be..I don't think anyone knows what kind it is anymore. Not that the naming matters, but it would give me some idea of where I may be going with this..
I think the 'roids are working, Sal..I'm tooling right along. No roid rage either, much to everyone's relief..
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