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02-09-2009, 06:41 PM
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Member
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I thought about calling initially but my experience is that the people answering their phone lines are generally pretty clueless (answering questions by looking up answers in a preset database--something a monkey could almost do). Sure enough the person I spoke with gave set answers such as "their are no studies showing any interactions" and "we always defer to the treating neurologist" and "always tell your neurologist when you start a new drug.". I asked to be transfered to the research dept to speak with someone. He asked me if I was in the health field. When I said no he repeated his statement about checking with my neurologist. Erghhhhhh. It just frustrated me. Shared Solutions had no problem transfering me when I was having Weird reactions to Copaxone.
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On Tysabri and love it. . |
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02-09-2009, 07:42 PM
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Magnate
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Yeah, figured that would be the response. They have a script that they are required to go by and they are not allowed to vary from it, no matter what, but it was worth a shot.
How about asking the pharmacist? Maybe they have something in their database?
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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| "Thanks for this!" says: | Natalie8 (02-10-2009) |
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02-09-2009, 07:58 PM
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Grand Magnate
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i think the safest thing to do is ask your tysabri dr or your neuro.
i would trust this Q to the MD's
__________________
Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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02-10-2009, 12:34 AM
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RW-- Yeah, I guess they have a script they have to follow no matter what. I just wish I knew of another neurologist I could ask for another opinion.
Judy-- I asked my doc. and was unsatisfied with the answer unfortunately! She didn't really have an answer, only said that maybe I should go off of it to be safe. I probably will and find something else to take for acne. The other choice was birth control which isn't really on the top of my list. 
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On Tysabri and love it. . |
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| "Thanks for this!" says: | NurseNancy (02-11-2009), Riverwild (02-10-2009) |
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02-10-2009, 02:29 AM
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Grand Magnate
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Natalie, the person that seems to have studied minocycline the most on the MS forums is JackD. He seems to know a lot about what it does in MS, so you might want to try PM'ing him here.
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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02-11-2009, 01:45 AM
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Member
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Thanks for the referral Cherie!!!!
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On Tysabri and love it. . |
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10-10-2012, 01:10 PM
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#7 | ||
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New Member
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Hello,
This is my 1st post here. I was googling about the combination of tysabri and minocycline, and what possible side effects or cautions there are. I found this thread. Seems to be old one but I'm just asking that if anyone knows about the subject nowadays..? Or any links or people to ask, etc...? |
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Hybrid Mode
