Ican totally understand what you are saying. I had welts from Copaxone but they went away in time and no other sideeffects. I personally liked it better than my Rebif. I used copaxone for almost 4 years but then it quit. the Rebif made me sick burned likr the dickens and I still have indents in my skin but I stuck it out till now.I am on Tysabri because the Rebif quit. All the drugs affect diffrent people in diffrnt ways all I am suggesting is you discuss this with your Dr maybe for you one of the other drugs would be better. Many love one AND hate the other. For me I did not realize how miserable I felt with the Rebif untill after I quit. I did not have a down day.

Good luck whatever decision you make but pleaselet your Dr know

Laurie f

I don't blame you one bit. That's the decision I made exactly one year ago. Was on Copaxone faithfully for 9.5 months, but it just made my body so slow and achy.

I've been on LDN since August. The numbness has continued to creep slowly up my right arm, but I've always thought I had more stamina on LDN.

Sorry for your headaches. Ugh.

Isn't it nice to have a mother who loves and cares about you?

Hey Laura, you tried and you made every effort to deal with Copaxone. So will you try another DMD? You probably made the right decision. Keep up your healthy life style, take a break then make a plan.
C gets me down every so often, sometimes the pain or the site reaction just makes me want to say WTF am I doing this for. There a few new drugs in the pipeline expected to be out soon so there is hope that something better is on the horizon.

I totally understand, Laura. Especially if you don't even feel that it is helping you.

Go forward for awhile with your attitude exercise and diet and see how it goes. You can always get back on one of the other DMDs, if you think it could help.

Yes, LDN may be worth a try for you.

Have you considered giving the interferon's a shot (pardon the pun), Laura?

You know that Copaxone isn't for you, but you may do ok on Rebif, Avonex, or Betaseron. I know the MS seems stable and not aggressive at this time, but that could be partially attributed to Copaxone too. The shots may hurt, but it could be working too ...

If you decide to go off all of them for now though, I would agree that it would be worthwhile to try LDN. You have nothing to lose and lots to gain (potentially).

Cherie

Good for you laura, for taking such a proactive health stance w/the diet and exercise. Wish I would be more consistent w/both of those topics.

Keep us posted on how your'e doing and esp how you are feeling. (hugs)

Laura, I hope it goes well for you!