advertisement
Reply
 
Thread Tools Display Modes
Old 02-20-2009, 12:24 PM #21
AfterMyNap's Avatar
AfterMyNap AfterMyNap is offline
Wise Elder
 
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
AfterMyNap AfterMyNap is offline
Wise Elder
AfterMyNap's Avatar
 
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
Default

Thanks, Cherie, that's pretty much the general consensus among my circles. Note though, it's fraught with subjective caution, "tends to" "is believed" "may increase/decrease", etc. No one knows! Damnit!

Sal, yep, that was in part why I quit it. It had been six full years of loyal use and in that six years, I tracked a steady decline. The mystery remains, but my personal conclusion was drawn from the fact that I did not believe it was helping, I suspected it was causing, and to be honest, I was getting ready to take a major road trip where it wasn't invited to join me.

At this junction, I feel it is imperative to say to anyone who may be teetering on decisions regarding their use of DMDs: Please do NOT draw any conclusions from this discussion! We are only an outspoken handful among many, many patients. Stick with your doctors and your own, personal case when choosing your path where DMDs are concerned.
__________________
—Cindy

For every day I choose to play,
I set aside a day to pay.
—AMN


"Sometimes plastic wrap just won't cling, no matter how much money you put in the meter."

—From the Book of True Wizdom
AfterMyNap is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Desinie (02-20-2009), ewizabeth (02-20-2009), SallyC (02-20-2009), SandyC (02-20-2009), Snoopy (02-20-2009)

advertisement
Old 02-20-2009, 02:02 PM #22
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

Quote:
Originally Posted by AfterMyNap View Post
At this junction, I feel it is imperative to say to anyone who may be teetering on decisions regarding their use of DMDs: Please do NOT draw any conclusions from this discussion! We are only an outspoken handful among many, many patients. Stick with your doctors and your own, personal case when choosing your path where DMDs are concerned.
EXACTLY, and thank you for point that out, Cindy!

Quote:
Originally Posted by AfterMyNap View Post
Thanks, Cherie, that's pretty much the general consensus among my circles. Note though, it's fraught with subjective caution, "tends to" "is believed" "may increase/decrease", etc. No one knows! Damnit!
Yep, yep, yep. That's the hard part about this disease . . . nothing is absolute, and most information is based on best-guesses, assumptions, generalizations, etc.

I still think it is awesome news that NONE of your lesions have changed in two years. That HAS has to be good news!

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AfterMyNap (02-20-2009), ewizabeth (02-20-2009)
Old 02-20-2009, 02:20 PM #23
ewizabeth's Avatar
ewizabeth ewizabeth is offline
Elder
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
Thumbs up

Quote:
Originally Posted by AfterMyNap View Post
At this junction, I feel it is imperative to say to anyone who may be teetering on decisions regarding their use of DMDs: Please do NOT draw any conclusions from this discussion! We are only an outspoken handful among many, many patients. Stick with your doctors and your own, personal case when choosing your path where DMDs are concerned.
I'm glad you made that point Cin. I took Copaxone for 18 months and I didn't get any worse while on it. I think there are lots of other examples of successful treatment with Copaxone.
__________________
Wiz

Turn Left at the next election.
.


RRMS DX 01/28/03 Started Copaxone again on 12/09/09
ewizabeth is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AfterMyNap (02-20-2009), SallyC (02-20-2009), SandyC (02-20-2009)
Old 02-20-2009, 03:39 PM #24
SandyC's Avatar
SandyC SandyC is offline
Wise Elder
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
SandyC SandyC is offline
Wise Elder
SandyC's Avatar
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
Default

Quote:
Originally Posted by AfterMyNap View Post

At this junction, I feel it is imperative to say to anyone who may be teetering on decisions regarding their use of DMDs: Please do NOT draw any conclusions from this discussion! We are only an outspoken handful among many, many patients. Stick with your doctors and your own, personal case when choosing your path where DMDs are concerned.
I agree as well. MS is so unpredictable no one can make a case against dmd's. It could have happened whether or not one used dmd's.
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt
SandyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ewizabeth (02-20-2009), NurseNancy (02-20-2009), SallyC (02-20-2009)
Old 02-20-2009, 04:13 PM #25
NurseNancy's Avatar
NurseNancy NurseNancy is offline
Grand Magnate
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
Default

this is an interesting conversation.
i started rrms and then to spms.
over these 6 yrs i've had steady, slow progression. however, i've had NO flares.

i've been on copaxone the entire 6 yrs too and seem to be relatively stable.
my mri's have been stable too.
for those reasons i'm just going to keep on going. til something happens to make me Q things.

it would be nice if i could make it another 10yrs. but we all know MS is progressive and noncurable. but i can hope.
__________________
Judy
trying to be New Skinny Butt
______________________
You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
--------------------------------------
"DESIDERATA" by Max Ehrmann
NurseNancy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Desinie (02-20-2009), SallyC (02-20-2009), SandyC (02-20-2009)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Newbie - Sort Of... PatriciaQ New Member Introductions 6 03-06-2008 10:12 AM
New Member - sort of Starlord New Member Introductions 2 12-14-2007 02:19 AM
Hello All I'm Sort of New BrokenBladder Fibromyalgia and Chronic Fatigue 6 11-26-2006 11:39 PM
I sort of LIKE it here....you can be yourself here.. KTM5665 Children's Health 12 10-07-2006 02:07 PM
New, sort of..... Bubbi Community & Forum Feedback 5 09-29-2006 10:10 AM


All times are GMT -5. The time now is 06:05 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.