Thanks, Cherie, that's pretty much the general consensus among my circles. Note though, it's fraught with subjective caution, "tends to" "is believed" "may increase/decrease", etc. No one knows! Damnit!

Sal, yep, that was in part why I quit it. It had been six full years of loyal use and in that six years, I tracked a steady decline. The mystery remains, but my personal conclusion was drawn from the fact that I did not believe it was helping, I suspected it was causing, and to be honest, I was getting ready to take a major road trip where it wasn't invited to join me.

At this junction, I feel it is imperative to say to anyone who may be teetering on decisions regarding their use of DMDs: Please do NOT draw any conclusions from this discussion! We are only an outspoken handful among many, many patients. Stick with your doctors and your own, personal case when choosing your path where DMDs are concerned.

EXACTLY, and thank you for point that out, Cindy!

Yep, yep, yep. That's the hard part about this disease . . . nothing is absolute, and most information is based on best-guesses, assumptions, generalizations, etc.

I still think it is awesome news that NONE of your lesions have changed in two years. That HAS has to be good news!

Cherie

I'm glad you made that point Cin. I took Copaxone for 18 months and I didn't get any worse while on it. I think there are lots of other examples of successful treatment with Copaxone.

I agree as well. MS is so unpredictable no one can make a case against dmd's. It could have happened whether or not one used dmd's.

this is an interesting conversation.
i started rrms and then to spms.
over these 6 yrs i've had steady, slow progression. however, i've had NO flares.

i've been on copaxone the entire 6 yrs too and seem to be relatively stable.
my mri's have been stable too.
for those reasons i'm just going to keep on going. til something happens to make me Q things.

it would be nice if i could make it another 10yrs. but we all know MS is progressive and noncurable. but i can hope.