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Old 02-21-2009, 06:45 PM #1
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Default Question for LDN patients:

I’ve only been diagnosed for a few years, but my annual MRI has always had the same “lesion count,” that being “too many to count.” In other words, my MRIs are stable. It is almost time for my annual MRI. Since I have enjoyed such wonderful (though partial) relief from my MS symptoms since I started LDN (September, 2008), I am wondering if there will be any change in my MRI.

Have any of you (us?) had MRIs taken both before and after starting LDN? Was there any change? Better? Worse?
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Old 02-21-2009, 07:15 PM #2
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Hi, Marion! I haven't been on the board a lot these past few months so I was very happy to see your LDN update accompanying the question! That's so great that it's been working for you relief-wise! Good luck with the MRI!
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Old 02-21-2009, 07:26 PM #3
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Bearygood, if I am not mistaken you were somewhat instrumental in my decision to go for an LDN Rx. It is really good to see your smilin’ screen name. Yes, I am doing really well. I feel very fortunate.
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Old 02-21-2009, 08:22 PM #4
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I haven't had an MRI in over 10 years and I have been on LDN for almost 6 yrs. I just never saw the need for another MRI. I pretty much knew that my MS was still there, but, responding well to LDN.

Thrilled for you..
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Old 02-21-2009, 08:51 PM #5
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Marion, thanks for asking this question. I have been thinking about trying LDN for awhile, but have not been entirely convinced that it really helps. (I have read the two studies that have been conducted on LDN and the personal accounts of several individuals). However, I have not seen anyone refer to their MRI's after going on LDN.
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Old 02-22-2009, 12:06 AM #6
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Except one person, everyone that I have heard of, that has had a MRI, has had zero to extremely little activity since they started on LDN.

Two that come to mind, from this forum, are LarryLDN and PrettyPearl(girl?). Both had great results. Polar(express? ~ can't remember the last part her nickname at the moment) also had one recently, with not such great results. She is the one person that I've heard of with bad results, but I don't know how long she was on, dosage, whether she stayed on consistently, or . . . ?

Hopefully they will come on and tell us about their experience.

My neuro has always been of the opinion that there is not much point in getting a MRI if I have remained stable throughout this period. I suspect a lot of neuro's have this approach, no matter what med we are on ....

I didn't have a MRI before starting on LDN, and the one I had years before was without contrast. I don't really have a "baseline", but I am getting another MRI after being on LDN for 4 yrs now. The purpose is mostly to evalute my spinal lesions against NMO/Devics though.

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