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Old 02-25-2009, 12:19 AM #11
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I got bad site reactions with both Copaxone and Betaseron. It got to where I didn't have anywhere to inject and I'd have no choice but to wait it out. Once I stopped all shots my skin did eventually return to somewhat of a normal condition....although I do have several marks that I think are permanent. I think the medication and constant stabbing causes necrosis especially in tender areas like the stomach and arms.
I wonder if people who have other diseases that require daily shots (like diabetes) have the same problem with the skin changing?
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Old 02-25-2009, 07:58 AM #12
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I wonder if people who have other diseases that require daily shots (like diabetes) have the same problem with the skin changing?
I've often wondered about that, too. But I think it's the medication that causes the site reactions more so than just the actual shot itself. This would be a good question to ask your Neuro.
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Old 02-26-2009, 08:59 AM #13
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I've often wondered about that, too. But I think it's the medication that causes the site reactions more so than just the actual shot itself. This would be a good question to ask your Neuro.
My boyfriend is type 1 diabetic, and he has a large skin dent on his arm in 1 spot from repeated injections of insulin there. So it CAN happen in other conditions requiring regular injections apparently.

Edit: he stopped injecting with needles a while ago and is now on the pump, which he said is nothing short of a miracle.
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Old 02-26-2009, 09:03 AM #14
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I worked as a prison nurse forever.

Have you seen the track marks from heroin users? well, that is caused from the talc powder they use to cut the drug with. That stuff is NOT tissue friendly, and does a great deal of damage. Most folks thought it was from dirty needles, or bad technique, but nope, its the stuff they cut it with.

I have know diabetics with dents, and seen chemo patients with baby smooth skin. Some has to do with genetics, and collagen levels, and some has to do with what they put in the needle.

Me? I have a couple of dent on my tummy from picking my fav spot to shoot. I am gonna have to start moving it over. My legs are lumpy, but not dented. Stopped using my arms, and my butt can handle it.
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Old 02-27-2009, 10:33 PM #15
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Sounds like you hit a muscle to me. IPIR's are very different. They usually involve difficulty breathing, chest pain, etc. If you are having an IPIR, you will know it. I would begin to turn bright red,was extremely hot, and would experiencing crushing pain in my chest and back before the needle was even out. By the way, mine last between 15 and 20 minutes.

IPIRs do NOT include difficulty breathing - if you ever have that happen call 911 immediately.
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Old 02-28-2009, 10:43 AM #16
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IPIRs do NOT include difficulty breathing - if you ever have that happen call 911 immediately.
Umm Bird, I beg to differ. It is listed on the literature and the nurses at SS did not suggest I call 911.
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Old 02-28-2009, 03:42 PM #17
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The IPIR I had included shortness of breath. My chest was heavy, and I felt like I couldnt get air in. It was scary! The SS nurse also did NOT suggest I call rescue. As time passed, it got better, and better.
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Old 03-05-2009, 08:31 PM #18
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Umm Bird, I beg to differ. It is listed on the literature and the nurses at SS did not suggest I call 911.
You are correct. The literature states that if you have swelling of the face, tongue or eyes to sek medical attention immediately.
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