Well, that just stinks. I'm so sorry, Keri. Feel better soon! Like tomorrow!

Oh no! I'm so sorry to read this.

Please feel better soon, and know that we're all here thinking if you.

Sorry to hear you are having yet another exacerbation. Please let us know what the Drs from JH say when you hear from them.

Good luck
laurie f

So sorry to hear you're doing poorly...keep us up to date on what's going on...

Sorry to hear that your troubles are back again Keri. You've tried so hard and endured so much and it's just not fair!
Let us know what is going on. You're in new territory here and I have no advice, just hugs and prayers that you get some answers and relief.

Keri, I'm so sorry about all this. You keep trying so hard, and MS keeps biting you in the behind.

Know that we are all thinking of you and hoping for the best.

Well, right now I am seriously considering re-dosing with HiCy as my next course of action. Not thrilled about it - but not sure I have many choices. My MS seems to be extremely aggressive - and I just can't "stand still"....



5 relapses since January 2008 when I was diagnosed. My neuro called it - said I wouldn't got more than a few months without an exacerbation. I do go 5.5 months after HiCy....but that's about it...

Seriously depressed here...and these fandangled (nice G rated way of putting it!!) steroids are NOT helping my mindset.

I feel like I am losing the battle big time....


~keri

I hear you Keri. If there is a chance that hicy will work better this time, I would go for it. Nothing else seems to be helping.

Best of luck this time..

Keri, so sorry to hear about this. I hope that things turn around for you soon -- you've been through so much!

Hi Keri,
I am sorry to hear what you have been going through. If it is of any consolation to you, I had 4 relapses a year, some of them overlapping the other. This was from 2000 to 2002. The two years were living heck. I did Avonex for one year and my body couldn't tolerate it. I was worse with progression. I was switched to Copaxone for 3 1/2 years.

The next two years, 2003 and 2004, I had two relapses a year. Each lasting 8weeks, leaving residual damage with each remission. I always did high dose oral steroids with these DMD's when relapsing.

I had to stop all DMD's due to other complications with them. I continued to relapse twice a year, being my normal, and did the high dose 10 or 5 day course of IVSM. My MS doctor would only give me oral or IVSM with a space of 6 months in between, no sooner due to the high dosage.

This was to give my body a chance to start making it's own cortisone.
The adrenal glands produce the equivalent of 35-40mg of cortisone acetate per day for all people.

Sometimes the oral or IVSM showed benefit right away. Other times it took it's good old darn time to bring me back to my baseline.

I can understand your frustration having 4 in a year and probably one so far in 2009, that you have. It is scary, I know. With Relapsing MS it is the nature of the disease to have these crapola relapses. Also with the uncertainty of where and when they will occur.

I hope your relapses calm down. Maybe the steroids will make a difference this time. I just wanted to give you some hope that it is possible. You can relapse without progressing sometimes. I must have had a Gazillion relapses in the last 30 years.

I know this is the other side of the coin from what your doctor is saying. I just wanted to give you some food for thought. You and your dr are the best judge of your health. This was just my two cents worth. JMO

I wish you well, take care.