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Old 03-06-2009, 11:59 PM #21
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lady_express_44 lady_express_44 is offline
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lady_express_44 lady_express_44 is offline
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Relapses are very unpleasant, Keri, and can be very debilitating, BUT . . .

"Acute relapses in patients with relapsing-remitting multiple sclerosis (MS) rarely lead to disability, according to a retrospective chart review presented here at the American Neurological Association (ANA) 133rd Annual Meeting. Loren Rolak, MD, Marshfield Clinic, Marshfield, Wisconsin, explained that many patients with MS fear they "might wake up paralyzed" from an acute relapse. To assess the likelihood of severe disability from an acute relapse, Dr. Rolak examined the clinical course of 1,078 patients with relapsing-remitting MS over the last 14 years from his own database of patients with MS treated at Marshfield Clinic.

The patients in the database had a total of 2,587 attacks (mean of 2.4 attacks per patient, range: 1-14 attacks over 1-34 years). Only 7 of 1,078 patients (0.6%) had an attack that resulted in severe disability, defined as an Expanded Disability Status Scale (EDSS) score of 6 or more sustained for longer than 6 months. Two of the 7 patients who had an attack that resulted in severe disability presented with an acute severe attack at the time of their diagnosis with MS. Of the remaining 5 patients, 2 were taking interferon beta-1b, which did not prevent the severe disability. The other 3 were not taking interferon or glatiramer-acetate therapy........."

http://mrbrunches.lefora.com/2008/09...sult-in/page1/

It is hard to function normally when we are relapsing all the time, and I know how scary this is. Like Lady, I've had my fair share, some of which I thought I would not see the end or other side of.

But here we are . . . lady and I . . . years and years down the track, and still doing ok.

((((Keri))))

Cherie
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Old 03-08-2009, 04:43 PM #22
weeble37 weeble37 is offline
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Keri,

I'll chime in here also and say I hope things work out the best for you as soon as they possibly can.

I can feel your pain and frustration as you type your posts. It must be beyond aggravating to be fighting so hard and feel like you're not making much progress.

I hope the IVSM helps with this exacerbation. Keep us updated as we are all concerned about you.

Hugs,
Weebs
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