Primary Progressive MS and Copaxone???

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03-06-2009, 08:36 PM

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DizzyLizzy DizzyLizzy is offline

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Join Date: Dec 2008

Location: Minnesota

Posts: 222

DizzyLizzy DizzyLizzy is offline

Member

Join Date: Dec 2008

Location: Minnesota

Posts: 222

Quote:

Originally Posted by lady_express_44

Amy, are you sure he said "PPMS" and not just "progressive MS"?

The reason I ask is that they don't normally assess PPMS for the first few years; they would normally expect to see more spinal lesion activity and less brain lesion activity in the beginning, remissions do not occur so much, and "enhancing" lesions are far less prevalent in PPMS.

If it was "progressive RRMS" he meant, then your background seems to make more sense to me.

Cherie

He definately said primary progressive, both my husband and I heard him and asked him what that meant. And because I have not seen this Dr. face to face for more than 30 minutes, and from other suggestions, I am going to look for another opinion. I have too many questions that I don't feel were answered, and not only that, I would have hoped that he would have given information about things I would not have known to ask about, if that makes sense.

__________________

Amy

DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE

.

July 2006- First significant SXs, suspect it started back in mid 1990's
1/21/09 - Positive MS Dx
2/17/09 - 2nd Positive MS Dx
4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for
.

10/8/09-optic neuritis flair, Cog Fog, chronic headaches
5/4/09 - 12/15/09 Copaxone
1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion
3/3/16 - signed the documents to start the Lemtrada journey
4/25/16. Lemtrada begins.

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