Amy, I am a 63 year old woman with primary progressive MS. About a month ago, my neurologist convinced me to use copaxone. There have not been any obvious reactions to this medication, but no obvious good is being done either. I do everything to keep myself healthy, including exercising. But so far, the copaxone has not stopped me from getting gradually weaker and weaker. For all I can tell, it may have hastened the progression of the disease rather than slowing it. If anything dramatic happens to me one way or the other, I will try to let you know about it.
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Originally Posted by amyblake
I am still trying to learn about MS, but there is so much information that it is quite overwhelming. My new Dr. feels strongly that I have Primary Progressive MS and suggests I try Copaxone. From what I have read, it sounds like Copaxone is more helpful for Relapsing Remitting MS...
I'd love to hear from others with Primary Progressive and what have your experiences been. I live near Minneapolis and am looking for a Dr. that has some personality, because so far I have been seen by two neurologists and have not felt so comfortable with either one.
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