NeuroTalk Support Groups - The results are in... The word progressive is printed on them.

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- - The results are in... The word progressive is printed on them. (https://www.neurotalk.org/multiple-sclerosis/82175-results-word-progressive-printed.html)

Quote:

Originally Posted by legzzalot (Post 485439)

Well, three of my old lesions decided to merge and form one giant lesion that spans from my C7 to my T2 and... "This has progressively enlarged compared to the previous study and involves two-thirds of the cross sectional area of the spinal cord. Previously the lesion in this region was limited to the T1 level and involved one- third of the cross sectional diameter area of the cord."

"in comparison with 10/29/2008, there has been interval progression of demyelination in the partially visualized lower cervical spinal cord and upper thoracic spinal cord at the T1/T2 levels.

"The findings have progressed compared with the recent prior study from 10/29/2008."

This is to go along with the 6 other new lesions they found on my spine. I get the brain results back tomorrow.

The good news is none of them responded to the contrast so it seems none of them are active at this time. Which is very good news. And I will stick to remembering the good part.

The bad part is he used the P word 3 times! Which I am trying not to dwell on too much I knew it was progressing. But seeing it in black and white somehow makes it more real.

Doctor is calling me in muscle relaxers and anti inflammatories in hopes of pain management but nothing else he can do at this time, we have to wait until next week when my neuro gets back from vacation.

How do they tell that they are active?

Quote:

Originally Posted by legzzalot (Post 485439)

The good news is none of them responded to the contrast so it seems none of them are active at this time. Which is very good news. And I will stick to remembering the good part.

That's what's important beautiful.:hug:
And if you don't mind me asking, what meds do you take?

I am the MonSter MS fears.

Positive thoughts going your way!:hug:

Taffy your signature is too cute! That is exactly what happens to chocolate bunnies in my house too! Even worse fate for those reese's peanut butter eggs!

Moose-> to answer your question...... I am on copaxone daily injections, started baclofen today for the spasms,1600 mg of ibuprofen twice a day, Happy little amitriptylin pill to make me sleep a little blue zoloft pill that I don't think is working, but I have promised to take it for another month, allergy meds, and then I have another bag of lovely migraine pills and related stuff that fortunatley I haven't had to take in a few weeks.

Which is a lot of pills. And no, I am not joking when I say that the day I was diagnosed I had to send someone to get me tylenol because we didn't even own a bottle of asprin.

Patch-> When they are active for some reason the contrast makes them light up. Ironically, they are harder to see (for me anyway) when they are not lit up. Radiologist can see them plain as day, I dunno.

And thank you everyone for the kindness and hugs... it's been a very long day.

As a PPMSer, I've never had an enhancing lesion in my life. At first, reading my MRI report I was thrilled. Small, not enhancing, it all sounded good for MS. Then I found out it was PPMS. I have one spasming leg, but that's occasional and I don't need to medicate, my fatigue level is not overwhelming ( thouh I do get tired but I am older). Sometimes I read and don't sleep during my afternoon break. Some write about RR and my PP, while affecting my legs, has not been real hurtful in other ways. What I'm trying to say, everyone is different. My MS is not your MS. Someone said "location, location, location. As some men say, "size doesn't always matter". Well, I've found this to be true. In PPMS I mean.

:hug::hug: Legz :hug::hug:

You are a fighter. Keep on keeping on. :hug:

Keep STRONG Legz

Think positive thoughts. I believe that is what we all have to do
to keep our sanity with this awful disease.

I know sometimes it's hard to do, especially when we are having
a flare. That is when I try my hardest to be positive and think there are
worse things in this world.

Here are some hugs to let you know we are all here for you

:hug: :hug: :hug: :hug: :hug: :hug: :hug:

Jappy :)

Hi legz,

I think you are such a 'UP" person. I hope your Neuro finds the right medication for you. Maybe it's time to revisit the tx options. I wish you good luck at your next appointment.:hug:

This was a site I read many times. It makes me feel better.:)

You Are Not Your MRI

Don't Feel Doomed ~ ~
MRI applies only indirectly. You may benefit eventually from new research, but that's a slow process. More likely, your neurologist may use MRI to assess whether your treatment is helping you adequately.

Accordingly, your neurologist may be motivated in part by your MRI to make changes in your treatment. But it's the clinical picture-how you function when examined (your eyes, strength, balance, and so on)-that speaks 1,000 words. As Randall Schapiro, MD, has publicly said, "You have to treat the person, not the MRI."

http://www.mult-sclerosis.org/news/A...otYourMRI.html

Keep the positive attitude Leggz~ will keep you in my thoughts and hope your pain subsides. Take care.

I had new lesions that lit up with the contrast and old lesions and lesions on top of lesions.

It is all the same, MS. And yet, we are all so different.