Leggz, spinal lesions that span over 3+ vertebra are potentially indicative of NMO. Have you been tested, or have they suggested testing for that? It has a 30% false negative result, but they can now dx it 70% of the time the first go around with NMO-IgG testing.

You have ON symptoms too, right?

Normally though, most people with NMO don't have too many brain lesions, especially when they are starting off with this disease. (That's just a generalization though.) Also, many people with NMO actually do very well with steroids, so that you didn't seem to respond as well to them might be an indication that it is not NMO.

If it is NMO though, you would NOT want to be on the DMD's! That is one good reason to be tested.

I am currently undergoing the same testing, after 18 yrs with this disease.

I'm so sorry to hear of your new results. :hug:

Cherie