When I hear 'progressive', I think of MS in general. Anyone with me?

Sure you can have periods of inactivity, but at the end of the day, isn't every form of MS progressive to some degree or another?

I agree, new lesions non enhancing is a very good result, and would possibly explain why your steroid treatment didn't work for you.

Don't get yourself down girl.

MORE HUGS...

and more (((hugs)))

As a PPMSer, I've never had an enhancing lesion in my life. At first, reading my MRI report I was thrilled. Small, not enhancing, it all sounded good for MS. Then I found out it was PPMS. I have one spasming leg, but that's occasional and I don't need to medicate, my fatigue level is not overwhelming ( thouh I do get tired but I am older). Sometimes I read and don't sleep during my afternoon break. Some write about RR and my PP, while affecting my legs, has not been real hurtful in other ways. What I'm trying to say, everyone is different. My MS is not your MS. Someone said "location, location, location. As some men say, "size doesn't always matter". Well, I've found this to be true. In PPMS I mean.

Legz

You are a fighter. Keep on keeping on.

Keep STRONG Legz

Think positive thoughts. I believe that is what we all have to do
to keep our sanity with this awful disease.

I know sometimes it's hard to do, especially when we are having
a flare. That is when I try my hardest to be positive and think there are
worse things in this world.

Here are some hugs to let you know we are all here for you



Jappy

Hi legz,

I think you are such a 'UP" person. I hope your Neuro finds the right medication for you. Maybe it's time to revisit the tx options. I wish you good luck at your next appointment.

This was a site I read many times. It makes me feel better.

You Are Not Your MRI

Don't Feel Doomed ~ ~
MRI applies only indirectly. You may benefit eventually from new research, but that's a slow process. More likely, your neurologist may use MRI to assess whether your treatment is helping you adequately.

Accordingly, your neurologist may be motivated in part by your MRI to make changes in your treatment. But it's the clinical picture-how you function when examined (your eyes, strength, balance, and so on)-that speaks 1,000 words. As Randall Schapiro, MD, has publicly said, "You have to treat the person, not the MRI."

http://www.mult-sclerosis.org/news/A...otYourMRI.html

Leggz, spinal lesions that span over 3+ vertebra are potentially indicative of NMO. Have you been tested, or have they suggested testing for that? It has a 30% false negative result, but they can now dx it 70% of the time the first go around with NMO-IgG testing.

You have ON symptoms too, right?

Normally though, most people with NMO don't have too many brain lesions, especially when they are starting off with this disease. (That's just a generalization though.) Also, many people with NMO actually do very well with steroids, so that you didn't seem to respond as well to them might be an indication that it is not NMO.

If it is NMO though, you would NOT want to be on the DMD's! That is one good reason to be tested.

I am currently undergoing the same testing, after 18 yrs with this disease.

I'm so sorry to hear of your new results.

Cherie