advertisement
Reply
 
Thread Tools Display Modes
Old 03-23-2009, 08:45 PM #1
AaHaA AaHaA is offline
Junior Member
 
Join Date: Mar 2009
Location: Washington, DC Metro Area
Posts: 13
15 yr Member
AaHaA AaHaA is offline
Junior Member
 
Join Date: Mar 2009
Location: Washington, DC Metro Area
Posts: 13
15 yr Member
Confused Common Neuro Care...

I had an appointment on Friday with my neurologist (the 3rd I've seen since I was diagnosed last March), and I was sorta surprised by my visit. 1) Is it common to have no physical exam during an appointment--not so much as a reflex tap? 2) Is it common to be denied an MRI? (I haven't had one in over a year, and I'm interested in seeing how things are doing.)

Also, my neuro says that my persistent symptoms are no indication that I'm getting any worse...that these chronic pains and such are only 'symptoms,' and not exacerbations. While I understand the difference (I think), I got the sense that my doctor won't take my symptoms seriously until they're severe. However, I see the presence of symptoms in a "cause--effect" kind of way. My gut says that something's going on, but maybe I'm just being a worrier...anyone have some advice?

By the way, my instinct is telling me to Donald Trump this doc..."you're fired!"
AaHaA is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
NurseNancy (03-24-2009), SallyC (03-24-2009)

advertisement
Old 03-23-2009, 08:55 PM #2
msarkie msarkie is offline
Member
 
Join Date: Jan 2008
Location: Springdale, AR
Posts: 328
15 yr Member
msarkie msarkie is offline
Member
 
Join Date: Jan 2008
Location: Springdale, AR
Posts: 328
15 yr Member
Default

I don't know what you went in for, but I can't imagine not having any kind of physical exam unless it was just a follow-up. I usually try to give people the benefit of the doubt, but it is very aggravating to feel like you're being blown off. What symptoms are you having?
__________________
msarkie

"Never try to teach a pig to sing.
It wastes your time, and annoys the pig."
msarkie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AaHaA (03-24-2009)
Old 03-23-2009, 09:08 PM #3
AaHaA AaHaA is offline
Junior Member
 
Join Date: Mar 2009
Location: Washington, DC Metro Area
Posts: 13
15 yr Member
AaHaA AaHaA is offline
Junior Member
 
Join Date: Mar 2009
Location: Washington, DC Metro Area
Posts: 13
15 yr Member
Default

Quote:
Originally Posted by msarkie View Post
I don't know what you went in for, but I can't imagine not having any kind of physical exam unless it was just a follow-up. I usually try to give people the benefit of the doubt, but it is very aggravating to feel like you're being blown off. What symptoms are you having?
It was a follow-up appointment, but the last time he did any physical assessment was back in June 2008. It just seems odd to me.

Over the past month or so, I've been experiencing a really sharp pain in my left leg/hip/butt region. Almost every morning and night (right before bed time) I get this sharp pain (think like an ice cream headache). Eventually it'll dull down into a throb that goes down my leg. I've had some nights where the pain was so bad that I had trouble falling asleep. My neuro calls this "normal aches and pains." He told me to take Aleve.

I don't know. Perhaps I'm being hyper-aware, and this really isn't anything to worry about. I would've preferred a kind explanation rather than a blow-off, though!
AaHaA is offline   Reply With QuoteReply With Quote
Old 03-23-2009, 09:12 PM #4
legzzalot's Avatar
legzzalot legzzalot is offline
Magnate
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
legzzalot legzzalot is offline
Magnate
legzzalot's Avatar
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
Default

yeah I would dump him and find a new one. I've never heard of a doctor denying you an MRI if you want one. That just sounds silly. Kinda reminds me of Dr. idunnohaveanotherpill. I dumped him too.
__________________

.
I am not spoiled!
legzzalot is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AaHaA (03-24-2009)
Old 03-23-2009, 09:30 PM #5
Erin524's Avatar
Erin524 Erin524 is offline
Elder
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Erin524 Erin524 is offline
Elder
Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Default

My last 3 neuro appointments I've been to, the neuro didnt do a neuro check for anything. Just talked to me. (which is fine with me...he always has me put on the paper gown for a neuro check anyways...why I dont know, all he does is make me walk and checks my reflexes)

I do think one of the reasons I havent had a neuro exam by my neuro for most of the past year, might be HIS health. He's got some sort of arthritis or something going on, (I think he's also in his mid-to-late 80's) and maybe it's too painful for him to hold some of the tools for the reflexes? This may be why he's been kind of pushing the MS Clinic onto me, suggesting it the past couple of appointments.

I go to the MS Clinic in a couple of weeks. I'm hoping the new neuro there (only been practicing since 2008) knows something about LDN and will give me a Rx so I can try it. I do NOT want an MRI. I dont like them at all, first one set off my claustrophobia and now I really do not want to be inside of one again. Plus, I cant afford it. Crappy insurance.
__________________
~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~

~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~
Erin524 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AaHaA (03-24-2009)
Old 03-24-2009, 08:03 AM #6
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

listen to your gut! if you feel dismissed, and you feel that you are being treated as just number seven of seven hundred, then...its time to see a new guy. Sometimes places are overwhelmed, and cannot commit the time, and energy to pacify new patients, but to not do any sort of hands on exam is not a good start. I hope you find a listener.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AaHaA (03-24-2009)
Old 03-24-2009, 09:36 AM #7
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

Maybe it's different protocols in various areas, but I've never heard of anyone being in a gown for a neurologist exam here, with the exception of a lumbar puncture (for example).

I'm always in my street clothes and remain in my street clothes when I see my neurologist. He does the same type exam (walking, tapping knees, moving arms outward touching nose etc etc).
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AaHaA (03-24-2009)
Old 03-24-2009, 10:06 AM #8
azoyizes's Avatar
azoyizes azoyizes is offline
Magnate
 
Join Date: Sep 2006
Location: Salem, VA
Posts: 2,195
15 yr Member
azoyizes azoyizes is offline
Magnate
azoyizes's Avatar
 
Join Date: Sep 2006
Location: Salem, VA
Posts: 2,195
15 yr Member
Default

Something's strange with this guy. Follow your instincts, and shop around for a new neuro.

I'd guess that every other visit, my neuro does at least part of a neuro exam. He usually comes out to get me in the waiting room, which I figure is when he is better able to see me get up and ambulate. The exam rooms are small, and there's just no room to walk around with him, me, my rollator, and Montana my service dog in there.

I've never been asked to take off anything but my shoes, and have never had to take off everything and put on a paper gown for a neuro exam, except for a LP. That is strange, Erin.

Anyway, best of luck finding a doctor who will work with you!
__________________
Mair


.
azoyizes is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AaHaA (03-24-2009)
Old 03-24-2009, 10:55 AM #9
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Hi AahaA.. Your Neuro sounds like a jacka**, to me....dump him. Ask your PCP for a new referral. When I pay my hard earned money to see a Doc, I better be his only Patient, at the time.

I don't see a Neuro anymore. My PCP takes care of everything now.

BTW, my first ever Neuro exam was in gown, then in the hospital and another gown. Follow-up office visits were shoeless but with clothes on.

Good luck finding the proper care for you, AahaA..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AaHaA (03-24-2009)
Old 03-24-2009, 02:03 PM #10
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

I do go through all the neurological testing each time, but that's probably because I ONLY go in once a year. For the 15 yrs prior to 2005, I did all my testing through my GP, and generally that was only required once a year too.

I have had one MRI in 18 yrs, because they already know I have MS. I am going to have another only because now that they realize NMO/Devics is a separate disease, they want to have a good look at my spinal lesions ...

Our neuro's are probably the best judge on whether we are in a relapse, the symptoms are due to prior damage (and "permanent") and/or if the symptoms are due to a psuedo-exacerbation. You will likely be able to figure this out yourself in time too . . . but until we have that knowledge, we pretty much trust our neuro's for that evaluation. (If you are not comfortable with your neuro's assessment techniques though, that probably means you don't feel you can trust him either ....).

The sharp pain in your hip/butt down your leg could very well be sciatica. I would suggest that you have your GP assess that . . . but if it is instead related to the MS, he will guide you.

Very often we attribute too many symptoms to the MS, and often the problems don't have anything to do with the disease. That's why I always visit my GP first, he does the testing to rule out other causes, then I visit my neuro only if necessary.

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AaHaA (03-24-2009)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
A Miracle or Common Sense? Stitcher Parkinson's Disease 3 03-10-2008 12:41 PM
Dr. Kickbacks? How common? Vowel Lady General Mental Health & Emotional Support 2 09-14-2007 03:40 PM
World-Class Neuro Center Opens: Georgia Neuro Center Stitcher Parkinson's Disease 0 05-16-2007 08:01 PM


All times are GMT -5. The time now is 01:43 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.